Hello Everyone,
This is my first post and I actually live in the United States not the UK. I am posting here because there seems to be more support and knowledge about this condition in the UK. I am a mom to a 16 month old that has been officially diagnosed with PCD (By genetic testing) and also has situs inversus. She has had many ear infections since birth, so we had ear tubes put in when she was 13 months old. She still gets ear infections even with tubes put in. We will finish up a round of antibiotic ear drops (10 days) and within 5 days she will start to get very irritable and thick drainage will start to come out of her ears again. She seems happy and her ears seem clear when she is on the ear drops. What have you done to manage ear infections in your kids at this age? I am also concerned about her hearing when she has drainage. I know that she can hear very well when her ears are clear, but most of the time they are not clear unfortunately.
Thank You!
Hi my son was diagnosed at 6. One of the main give always that he had PCD was his ears. He too had recurring ear infections with ear tubes. It was a nightmare .
He had 2 sets each set got blocked and infected.
I think the general consensus in the uk is that children with PCD is that the tubesmake it worse and should have them removed. At least that's what we were told.
My son now has hearing aids and no tubes and has had no infections since.
Maybe it's worth discussing this with your doctors . Hope this helps .