Hello Everyone,
This is my first post and I actually live in the United States not the UK. I am posting here because there seems to be more support and knowledge about this condition in the UK. I am a mom to a 16 month old that has been officially diagnosed with PCD (By genetic testing) and also has situs inversus. She has had many ear infections since birth, so we had ear tubes put in when she was 13 months old. She still gets ear infections even with tubes put in. We will finish up a round of antibiotic ear drops (10 days) and within 5 days she will start to get very irritable and thick drainage will start to come out of her ears again. She seems happy and her ears seem clear when she is on the ear drops. What have you done to manage ear infections in your kids at this age? I am also concerned about her hearing when she has drainage. I know that she can hear very well when her ears are clear, but most of the time they are not clear unfortunately.
Thank You!
As mentioned below we do a sinus rinse twice a day. Not a normal sinus rinse though, since she is so small. We squirt saline in and use our suction machine. Kinda like the suction the have at the hospital. This was prescribed to us. I feel like this is what what keeps us from getting ear & sinus infections. She has only had 1 ear infection. Also, her dr. Does not believe tubes are a good thing. So she will not be getting them. They can cause excessive drainage and cause more issues. He said he practices more like his European counterparts. So she is getting cochlear hearing aids. They sit behind her ears and go directly to her hearing apparatus (if you look these up don't freak out when you see these are transplanted into the head. We are getting the kind that is on a headband and they do not want us to get the transplant type since she will hopefully grow out of this and it's not a permanent hearing loss). This bypasses the fluid in her ears so she can hear clear all the time. This will help with her speech development. I'm not sure where you are located but we are in the Denver area and love our Dr's. Let me know if you have any questions 
Hi my son was diagnosed at 6. One of the main give always that he had PCD was his ears. He too had recurring ear infections with ear tubes. It was a nightmare .
He had 2 sets each set got blocked and infected.
I think the general consensus in the uk is that children with PCD is that the tubesmake it worse and should have them removed. At least that's what we were told.
My son now has hearing aids and no tubes and has had no infections since.
Maybe it's worth discussing this with your doctors . Hope this helps .