Athritic pain and PCD

Hi

I'm on prophylactic antibiotics (co-amoxiclav) and have been on them for over two years then take other rescue drugs when an infection flairs up.

Anyway one of the symptoms I used to have when I was getting an infection was joint pain mainly in my knees and sometimes ankles too.

It's been over a year now where I've had continuous joint pains, especially my knees which is really painful at times. Painkillers don't help sometimes but sometimes a hot water bottle helps.

I wanted to know if anyone knew if there was a link between PCD and arthritis? My consultant never seems surprised when I mention joint pains as a symptom but I've never asked him if there is a direct link and wondered if anyone knew and what they do that helps control the pain?

Thank you

Iram

7 Replies

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  • Dear Iram

    Are you sure it is arthritis ? Have you had appropriate investigation ? Maybe it is a bacterial cause as when you are ill the bacteria can get in your bloodstream ,strep in particular can cause HSP but symptoms are petecchaie and painful joints . Alison

  • Sorry to hear you are experiencing joint pain and it is now continuous. Fortunately it is not something I suffer with, although sometimes when I have a chest infection I will get pain in my hips, which the doctor told me is quite common, when you have an infection, for the reasons described above by Alison.

    Joint pain can also be a side effect of certain medications, so it could possibly be that. I don't think it is particularly specific to having PCD, it is extremely common for many different reasons, in fact in our house, it's my husband that suffers with arthritis and he doesn't have PCD. He does have painkillers, prescribed by our GP, but doesn't the take them very often.

    I hope you manage to find some form of pain relief that works for you.

  • Hi Iram, that is very interesting, our daughter also experiences strange joint pains at the outset of every infection. In fact sometimes she starts complaing a few days before the fevers or other infectious signs even start. Our gp dismissed it as irritable hip before, even though it can be in her hands feet knees or hips, and from what I've read this is usually a one off event, and not a regular occurrence. When she was in hospital last week we also asked about it, and they didn't have an answer either, just said aches & pains are a normal feature with many infections, and it's probably nothing specific. We're seeing her regular paediatrician next week, and I thought I'd mention it, as it does seem very odd.

  • Thank you all for replying. I'm not sure if it's arthritis as such but the pain is very similar when I ask my relatives who do have it.

    I have read somewhere before it could be as a result of antibiotics and considering I've been on them for such a problem my time it could be a reason.

    When an infection flairs up they definitely get worse (as opposed to just appearing like they used to) so that could be due to bacteria and inflammation around joints caused by infection.

    It's just unbearable at times as it's bad enough dealing with frequent infections but this is more difficult to deal with to be honest.

    I'm not due to see my consultant for a while but I will ask and if I remember I will post answer here if it helps others.

    Thanks again for you all for taking time to answer.

    Iram

  • Hi Iram

    Sorry to hear you are having a tough time time with joint pain. I have had joint pains for many years. My CF team think it is beacause of being colonised with pseudomonas as this was at the same time that I started with problematic joints. It is something they see in patients with CF. If I have a course of oral steroids it works beautifully!! I was on an anti- inflammatory drug for many years which really helped but unfortunately I have to stop it because of all the reflux problems I experience. My symptoms are certainly worsened by any exacerbation I experience with my chest. I have been under the care of a rheumatologist who has been particularly helpful.

    I have also asked this question to the group about joint symptoms with PCD but it appears unusual. Out of interest are you colonised with pseudomonas?

    Best wishes

  • Hello there!

    Thanks for the reply.

    I did have pseudomonas many many years ago and was hospitalised and treated for that.

    But the joint pains have been continuous a great deal after and all results I've had since have shown other bugs but not pseudomonas.

    But could the fact I did have it once be the reason I have pains?

    I'm due to see professor Wilson next month and will ask him.

    Will private message you soon!

    Take care

  • Hi all,

    Just wanted to update you all in case anyone' else has issues and not sure.

    I saw professor Wilson at royal Brompton and he said it's arthralgia and is very common with patients with bronchiectessis and will certainly occur during an infection.

    I asked why I was getting it even when I didn't have infection and he said that it's possibly because of plugging so if that's making me unwell still then there is some bacteria still in me that's causing the pain. He has recommended I take salt treatment when I use my nebuliser to reduce the plugging.

    I also asked if my antibiotics could be causing it esp as I'm on prophylactic as well others as part of a treatment plan and he said the ones I take are not associated with joint pains.

    He said once I try the salt treatment and if that clears the plugging and I still have joint pains then I need to be referred to rheumatologist.

    But bottom line is there is a link with patients who have PCD linked from bronchiectessis and arthralgia.

    I knew there was a link but I just wasn't sure why it was continuous now but Prof Wilson has clarified it for me.

    Treatment for it is normal anti inflammatory but I try not to take it as much as I get acid reflux!

    The joys of PCD!

    Have a lovely Easter weekend all of you

    Iram x

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