Cbd oil: Hi guys. I’m taking small amounts... - PBC Foundation

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Cbd oil

jplitt profile image
18 Replies

Hi guys. I’m taking small amounts of cbd oil for joint pain. Has anyone else used cbd oil? wondering is it has any negative interactions with urso and if it’s safe for your liver. Ty!

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jplitt profile image
jplitt
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18 Replies
Ballymahon2 profile image
Ballymahon2

My advice would be check it with your consultant i really dont know

luxe66 profile image
luxe66 in reply to Ballymahon2

Most amazing thing, that our consultants usually know less than we do)))

lilygrower profile image
lilygrower

I take cbd oil (8-10 mg per day) for the nausea I get from taking Urso. I talked to my hepatologist who said it was not problem to take it. It does help with the nausea.

There is not a lot of research available but what there is said no harm to liver. My labs are stable on Urso, so it isn't affecting how it's working for me. Do make sure to get it from a good source. Mine is grown organically in US so I know it doesn't have pesticides. It's called Hempworx. It has only minute amount (<.03%) THC so there is no "high". It has fewer side effects than most medications!

Lilygrower

Chulachela profile image
Chulachela in reply to lilygrower

Hi! I started using Hempworks over a month ago for the joint pains and it has helped alleviate much of my leg pains, has helped me sleep so much better and my labs got better after one month. I did clear it with my doctor. I take two drops in the am and 2 in the pm for sleep of the 750. You can order it online.

littysgirl profile image
littysgirl in reply to Chulachela

I read on a Hempworks Facebook page that they have discovered that someone is manufacturing a knock off of their product and that someone had bought the off brand through Amazon. It was a good fake as far as the packaging. Now Hempworks is going to have a certified seal on it's package because it has been through rigorous testing to prove that it was pure, solvent free and pathogen free. (I just copied this from that page. I have not used this product because I'm waiting for permission from my doctor. I just think that if/when that day comes, this is the company I'll use.)

Michi1 profile image
Michi1

This is an interesting thread. When I was first diagnosed, I did some research to see if using THC oil would be a better alternative than alcohol to relax. There's a study out there that says PBC patients have THC receptors in their livers (most people don't). Weird, right? I've never loved marijuana and the times I used it, it hit me like a freight train, so I've been reluctant to go there. Recently, I've realized I have symptoms of anxiety and have been considering CBD oil. I planned to ask my doctor about this when I see her next week. I'll let you know what she says.

roseter profile image
roseter

Does anyone know where we can get it from in the UK?

Buddy2017 profile image
Buddy2017 in reply to roseter

theoriginalalternativeoffic... are a few of the recommended sites .......I buy mine from the Original Alternative Official site ...hope this helps there are lots more companies

Buddy2017 profile image
Buddy2017 in reply to Buddy2017

opps I haven't copied addresses properly Pharmahemp store, Cheds CBD oil ,CBD Tardis online,,,,lots more if you google

.....

roseter profile image
roseter in reply to Buddy2017

thanks for your help x

Kieraferret profile image
Kieraferret in reply to Buddy2017

Hi I’ve just read your thread with interest, I’m really suffering with joint pain and I don’t want to be on codeine the rest of my life. I went on the site you recommended, how do you know what one to order and how long before it starts to work .

Regards kieraferret

Buddy2017 profile image
Buddy2017 in reply to Kieraferret

Can I suggest you join the Facebook group Nature' CBD Haven ....they will have files on the best to use as I don't suffer with pain .....I've read that a lot of them use green paste .....you have to start really slowly and build it up over the weeks until it starts to work for you

Kieraferret profile image
Kieraferret in reply to Buddy2017

Thank you I have applied to join x

in reply to roseter

Zipvit is reiable and cheaper than most.

zipvit.co.uk

No idea if it works!

Socermom profile image
Socermom

I have been taking 300mg of PureKana CBD oil morning and night. I do not know if it has changed by numbers, but I no longer have joint pain and I feel much better. Psychological placebo effect or not unless my liver numbers go up, I'm going to continue. If you look at research from Israel you will find a lot of positive results.

chrissey7 profile image
chrissey7

I've recently seen somewhere regarding CBD coffee anyone tried it

Gina50 profile image
Gina50

Hi I take Copaiba Essential Oil daily to help support my PBC. I spoke to my specialist first and we are checking my bloods regularly to ensure no side effects. The copaiba essential oil (eo) that I use has 60% BCP (Beta-Carophyllene), which is what gives the eo it's therapeutic effect of Cannabis oil (CBD) without any negative or psychotropic side-effects. I also use other essential oils daily in an aromatic dressing to help with my "PBC itch". Let me know if you'd like to know more about these wonderful oils.

littysgirl profile image
littysgirl

I would love to get some information on this. So many people are so happy taking the cbd oil but it's all just personal stories. Is no one doing any scientific studies? I asked the gastroenterologist that I'm seeing and he checked with a liver specialist that he consults with. They decided they were reluctant to recommend that I try it because there either were no scientific studies or studies using a large enough test group for them to feel comfortable about it. Consequently, I haven't tried it because I never want to be responsible for deliberately irritating my poor liver!

I have a friend who has a number of autoimmune diseases, including fibromyalgia, that have had her taking large doses of various pain killers for years. She tells me that since she has started cbd oil, she is no longer taking the pain killers. That alone I would think, would be better for her liver, not to process that. But she never told her doctor that she started with the oil and stopped with the pain killers - and I would never do that.

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