I am new here, I am 61 (Female) I started to feel odd back in January 2012; In May I lost my dog, then my father died in September after 9 long months of agony 2 months later my brother in-law had a fatal accident. I believed this trigger my condition. Normally I am a very energetic person, but suddenly I felt exhausted I will be working by the computer and falling asleep, my upper abdomen will fell so big, discomfort after eating and sometimes even I had to seat back since the pressure in my stomach was extreme. I notice a different smell on my urine and some itch at night.
I had all enzymes elevated, and a positive AMA; I been taking Urso together with Calcium and Vit D since late 2012. The fatigue is less every time, I do exercises at less 5 days a week walking for 1 hr. going uphill, I do not smoke or drink any amount of alcohol, no pain killers, even if I have a strong headache I only placed ice on my forehead and a strong coffee will do the trick. Now the enzymes are within the normal limits but high.
Last year my Gastro out of the blue wanted me to have a biopsy, without talking to me or explaining why, since the test result were within the limits, I refused and went to see another Gastro he told me that the risk was unnecessary, and my results where high but in the limits, as many of you already stated the biopsy is so small that chances are they won’t take the affected area and the result only will provide me maybe the stage level of my disease. I had in the past CatScan, and ultrasound. Yesterday I had another ultrasound only on the upper right side and under the ribs, also the spleen and ovaries, I do not have any idea why, since in the past the go all over the liver. I got the results for blood tests most are within limits (Alkaline, AST, ALT, PT, bilirubin, CBC, and creatinine).
The itch is less when it rains, I changed soap for my body, detergent with softener for clothing. I notice that when the weather is dryer my itches are worst, I used tons of body lotion and taking warm (not hot) showers sometimes at night it helps.
Still waiting for the ultrasound, and yes communication with my the Dr is horrible, I try to chance to other Dr but somehow the first Dr keep on sending me emails, it has been more than 2 years that I haven’t seen her she only sends emails and sometimes calls me is this normal? what is the Gastro expecting to see with the ultrasound? why the spleen and ovaries?
Good luck all thank you for your time, any comments are more than welcome