Pbc/aih

[jimshe]

Hi besides the dreaded itch not sleeping taking urso plus steroids started to have terrible headaches plus when I am in my bed have like heart palpitations have also osteoporosis and osteoarthritis and just getting over a broken arm to boot are these other issues normal . I don't see my liver doc till 23 of the month . I am an older lady '

[butterflyEi]

Hi Jimshe

I am not having to contend with anything like that which you are experiencing just now but I do get occasional bad headaches overnight which have no explanation. The heart palpitations that I have had late at night seem to follow a late dinner and/or too much chocolate.

Hope your liver doc can shed some light on your queries

best wishes

[jimshe in reply to butterflyEi]

Thank you butterflyei my headaches are nightime also but will get other checked at hosp take care sheila

[cazer]

Do have quite a few of symptoms.. do seem to get many more headaches than i used to.if my head is out of the covers at night and the heatings off and its v.cold i i tend to get a headache.also i know low iron can cause headaches so get them to check that. I feel.like i get palps from time to time but ecg was normal.

...only short trace for anaesthetic though not a good feeling though.

Are you on bone thickeners...i was as i was classed as mild osteoporosis..but with age allowance and vits and thickeners am back.in normal limits.i also have adcal...vit d with calcium.

Unfortunately steroids are bad for osteo...do u have yo b on them long? I spose thats for aih.

We dont get them for pbc but i did have a few in the beginming and i foind them an energy booster.

Hope u get headaches sorted.. just one more thing to put up with !!!! Best wishes cazer

Xx

[jimshe in reply to cazer]

Thank you cazer hosp wouldnt give me tablets for osteoporosis till I see liver consultant .not long to wait now soany questions to ask lol but we all plod on with it sheila

[cazer in reply to jimshe]

Yeah yhats all we can do and scratch of course...ha ha !!!!

[jimshe in reply to cazer]

Yes your right lol it's hard sometimes to try not let it get you down

[cazer in reply to jimshe]

Too true have had a few rough weeks as may be at the point of asessed for txp but borderline bad enough...have p.hyper tension varices so just want to get on txp list but will see specialist in few weeks but may not be ill enough.im finding that hard to get my head around!cazer.x

[jimshe in reply to cazer]

Nothing is easy when things not explained to us for us to understand properly. But keep your chin up and hopefully all will be ok in the end .I do hope so for yougood luck keep us informed how you are getting on take care sheila x

[cazer in reply to jimshe]

Thanks.x

[GrittyReads]

Have you had all vitamin and mineral levels checked? As PBC can effect some of these it may be worth having this investigated as a possible source of some ills.

Xx

[jimshe in reply to GrittyReads]

Thank you grittyreads will ask for all these checks you wonder what is going to crop up next

[chynablue]

I'm sorry to hear you are having to deal with these issues, jimshe. Do call your doctor as steriods can cause heart palpitations. Your dosage might need to be adjusted, and the doctors should monitor your heart to keep you safe. Fluctuations in blood pressure from palpitations could be contributing to the headaches as well. Best wishes

[jimshe in reply to chynablue]

Thanks you chinablue will make an appointment with doc .have never had palpations before was wondering if maybe the conditions we all have was the cause thanks for advice .I think we learn so much from the folk on here than what our gp or consultants tell us .