I was diagnosed with PBC 2 weeks ago and was in bits as I have other conditions too.
I have now got back into positive mode, but I was referred to a rheumatologist for my joint pain which they thought was arthiritis but he says it's not and that I have Fibromyalgia (just one more thing to add to the ever increasing list in the last year). He also said I believe this is what you have and not PBC at al,l so he ordered more blood tests.
I went to the GP today for the results and she still says they believe I have PBC (probably early stages) and have referred me to a liver specialist, the blood tests were normal but she said that the rheumatologist asked for tests to see if I am jaundiced, which she says is a symptom in the later stages. I am so confused. I have had the itch for 25 years and joint pain for the past 3-4 years and I also have chronic fatigue so what do I have?
Don't know what I want to hear from you lovely people really, just know I needed to get that off my chest as apart from the itch all my symptoms are pretty similar for my lung condition, thyroid and fibromyalgia. I'm getting to the point where I don't want them to do anymore tests as they keep coming up with new conditions each time :(((