Morning everyone, hope your day is kind to you all.
I’ve been on Urso since Feb when I was diagnosed with PBC. I’ve had issues and this is when the itching started and abdominal pain. After my visit last week to see GI consultant, she decided that I should have a 2 week break. If I improve, then Urso is a factor and she’ll look into changing this. If I get worse then it’s due to PBC and not Urso.
I’ve been gradually getting worse, Yesterday I had such an acidic stomach it felt like my heart was beginning to struggle, I had palpitations too. My muscle and joint pain are severely worse. My stools are now completely yellow and strong smelling, sorry, my fatigue has hit a new level of exhaustion too.
The consultant did say my liver function has improved slowly whilst being in Urso, my fibroscan 6 months ago was 8.2 and now is 5.4.
Has anyone else had to trial stop Urso, and what effects did it have on you?
Thanks for any help, Jane xx