Has this ever happened to anyone

[Arlie]

I’m going to my liver specialist tomorrow . First time in many years i’m somewhat concerned, my bili is up to 2.2 , Albumin low , potassium was low but got that back in range , ammonia slightly elevated but slowly coming down, a few more levels are not in range , but I feel ok

[4pjx__]

When I started Urso about a year ago my billirubin went down and then up and then down again....still not in normal range. So that can fluctuate and I think it could be your body getting used to the new medication. Also my ammonia was a little high now, last check, it's normal. My GI always checks for it my hep never does unless you are having issues. So, there's that. I just think they can go up or down for whatever reason...could be diet, stress or almost anything else. Just gon on believing you'll be okay.

Pam

[Arlie in reply to 4pjx__]

Thanks so much , but i’ve been on urso since I found out I have PBC in 1990

[Michiganpbc in reply to Arlie]

Curious if you have progreesed at all in all those years or got diagnosed with other diseases particularly autoimmune?

[Arlie in reply to Michiganpbc]

Hi , i’m holding my own with the PBC , right now having some blood changes, i was diagnosed with Scleroderma and I have Psoriasis

[Michiganpbc in reply to Arlie]

Did those 2 diagnosis come after the PBC diagnosis?

[Arlie in reply to Michiganpbc]

Scleroderma about less than a year Psoriasis quite a few years

[Michiganpbc in reply to Arlie]

Thanks i have lots of symptoms of lupus but because the lupus markers in a blood test are negative he wont diagnose me with it, i will get a second opinion later as i have a high ana titer and every symptom of lupus on the lupus symptoms list....

[Arlie in reply to Michiganpbc]

Mich , symptoms of lupus are deceiving, my sister and sisterinlaw have lupus , the ana and ama can fluctuate with pbc therefore you cant be positive of blood tests

[Michiganpbc in reply to Arlie]

That’s why I want the second opinion , from what I read on lupus u can b blood test negatively on lupus markers and still have the disease that they use symptoms more now with positive high ANA and I have every symptom listed except lupus blood test ....

[Arlie in reply to Michiganpbc]

Exactly

[VeeWat in reply to Arlie]

Can the ama go from positive to negative?