Consultant Endocrinologist said B12 was "normal" and in range that he would not support any further investigation of it or offer replacement despite being symptomatic. He went on to a level of 50 being low and and in range result was of no concern to him. Referred to guidelines and he just shook his head a said No.
From the very beginning of the appointment it was clear that his stance was that I was over-medicated on levothyroxine and every symptom was attributable to that.
Considering a private Active Vit B12 test, a kit would be no problem..... where do you recommend.
And anyone else experienced similar?
Written by
Bexg
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Go to the main website of ThyroId UK - link below. Click onto ABOUT TESTING in the Menu - where you will find the companies offering tests for Active B12.
I have not had that experience as I live in Crete. At least you will know 😊 The test still does not tell you what is in the cells - only the amount of B12 that can be transported into the cells. Raised Homocysteine and MMA can be an indicator of low levels in the cells.
The following UK articles/documents make it clear that people who are symptomatic for B12 deficiency should be treated even if b12 is within range. Is your endo aware of all of them?
Lots of B12 info in pinned posts on this forum. Useful summary of mainly UK b12 documents in third pinned post.
Link about writing letters to doctors about B12 deficiency.
My personal opinion is that it may be better to put things in a letter rather than just saying them in discussion or handing over copies as it may be harder to ignore a letter. My understanding is that in UK, letters to doctors are filed with a person's medical notes.
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