I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now.
My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day which seems to help a touch and advised that I should come back in 12 weeks for a b12 maintenance dose.
my haematologist has asked to do some additional tests, I think for coeliac disease etc.
Given the tingling in my hands ands feet, I have referred myself through private access to a neurologist to investigate the numbness and tingling. This happened last year and was given all clear after some nerve tests.
My question is - should I be insisting that the neurologist recommend to my GP that I have weekly b12 injections given some of my symptoms still persist? My GP advise that the body takes time to absorb the B12 and haematologist indicates the same. However I read on here that the injections are really supposed to continue until fatigue and tingling etc stops completely?
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Damacian
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Nice guidelines state every other day b12 injections with neurological symptoms One of the neurologists I saw said to have this as symptoms were severe .
G.p had already started this .
I was also booked for an Injection 12 weeks after loading .
I lasted 5 weeks so booked a b12 Injection
It was refused by nurse . I got to see a g.p
5mg folic acid is short term . I expect levels will be reviewed then a maintenence dose . Usually up to 400mcg.
Go by your symptoms .
Also clinical response to b12 injections
I think they mean it takes time for the b12 to heal .
It's absorbed very quickly as straight into your bloodstream .
It's how long you retain it and how high the levels have to stay to actually be able to use it.
Thanks. My neurologist had written to my GP to continue with another month of loading does given the prescence of tingling and occasional numbness etc. Advising that protocol means they should have continued. This was approved by a GP but challenged by my normal GP and nurses and was advised that the pattern of 12 weeks is rarely broken and a second round of loading doses are unadvisable and the nurse said that continued b12 be toxic? After some back and forth the GP approved every other day for 4 weeks.
My neurologist said that any excess b12 is simply expelled out of the system and no such thing as having too much?
My GP said that it takes a while for symptoms to subside so I guess how does anyone know if they need more doses or if in fact they just need to be more patient???
Thanks. Just finished EOD for 30 days. My next loading dose is in about 5 weeks which feels fine. I wanted to buy some online for fist time just in case I need some more to tie me over.
Have just bought these - Panpharma Vitamin B12 Depot 1000 µg/ml Injektionslösung, 10 pcs. Ampoules × 3 from Apohealth.de. Are they the correct ones? I wanted to keep Hybocobolamin.
Can I buy the needles and syringe from a normal chemist /pharmacy in the UK? Never done this before....I should have asked. the nurse when getting the EOD.
Yrs it's useful to use a 21G to draw up the b12 then get rid of the air in the 2ml syringe .Then change to the needle you want to inject with .blue 23G is widely used in the surgery 1"
But many use finer say 26G..
For IM
I do SC at home and use 30G 1/2 "( 27-3oG suitable)
I self injected and to be honest I feel awful. The B12 fatigue and body aches feel more pronounced than before? My last injection was 3 weeks ago and only took an injection a week ago to top up. Has anyone had this experience before? Can too much b12 in the system have these type of effects?
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