I was hesitating to write. First of all, English is not my native English. Secondly, I have discovered my IFA last week and it is a completely new thing for me. I would love to hear from you AS suffers if my symptoms are like yours. I know it can vary but on Tuesday I have an appointment with a neurologist and I would like to be sure (?) about my symptoms.
I struggle with my symptoms for years (around 12). I was getting sick very easily. I had to avoid places with crowds. I had to give up public transportation. The other symptom was fatigue. Which grows very slowly. Year by year. At the beginning, it was only just being little more tired. I had less energy. Going to sleep earlier. I am also very sensitive to cold. I need much warmer clothes than other people. I started to have chronic sinusitis. I went to laryngologist a few years ago and he could not find any real reason for me to have my problems. I had my tonsils out. It helped a little. I started to have pain all over my body. I had/have chronic pain in my neck. Started to have migraines. I also developed histamine intolerance. I am on a quite strict diet. A have almost every day low-grade fever which makes me even weaker. I started to accept my situation. Maybe because of my Hashimoto and advanced endometriosis I have to suffer from chronic fatigue. I had a little hope in me and I was testing one new supplement a month. For years nothing helped. And I tested magnesium citrate. It worked after one tablet! I got rid of my fatigue. I was so happy! Started to live my life fully! But it lasted only for 3 months. I couldn't find the reason. But after this event, I knew that my body is able to be more strong. That gave me hope and strength to start diagnosing myself again. I found fantastic rheumatologist (I suffer from Hashimoto so I thought that it is a good idea to rule out other autoimmune diseases). The rheumatologist was the first doctor who believed me and didn't want to send me to a psychiatrist or give antidepressants. We made a huge amount of blood tests - all negative. She thought about fibromyalgia but was not sure about it. And she did not give up. The other doctor (orthopedist !!) by coincidence found neurological symptoms in me. Numb left leg. I did not notice that. At that time a had an incidence of itching all over my body, antihistaminics and even steroids did not help me. I was so miserable. The itching lasted 3 weeks! I took one painkiller and my main itching was weaker. I started to suspect that it is neurological. I went to neurologist she gave me Neurontin which helped me!
So at the moment I have neuralgia and numbness and tingling in my left leg and mostly left hand. My left hand is weaker when I write on the keyboard. I also have Chvostek sign. New symptom tetany. Tingling in my face. Usually, the symptoms are stronger in the evening or after tiring day. I have also weaker muscles in my face. I can't smile as much as before. Also, stress makes me weaker. I made a test which ruled out hypoparathyroidism. And my endocrinologist suggested some kind malnutrition or digestive problems. I ended with a positive IFA.
I wonder if anybody can relate to my symptoms and give me a piece of advice what the neurologist should prescribe or test.
Sorry for such a long story. I needed your support. So happy to find this forum! Wishing you all well.