After thinking that my GP was great to acknowledge the fact that I need B12 shots every other day till no further improvement of my neurological symptoms, he is now saying that after talking to a neurologist, he is not convinced that B12 is the reason for my neurological symptoms and he is happily referring me to a neurologist. When I asked what are the possible causes for the pins & needles in my left arm & leg and the fact that it feels as if my left side is going to be paralysed, he had no answer (!). I said that I believe it is B12 because I can see the clinical response, again he didn't say anything and I believe he was probably thinking but did not dare say that everything is in my mind and I am probably a neurotic patient.
Now who knows how long it will take to have my appointment with the neurologist, who knows what he has written in his referral letter ( will the neurologist take me seriously if he has said that I am neurotic and I have probably googled my symptoms? something like this was implied last year)
I have had 18 injections so far and according to my GP he was advised by the neurologist that I have so much B12 in my body by now that I certainly don't need any more..that the B12 is enough to heal any damage and it will sustain me for several months. Now, has he suggested another B12 test? No! Has he suggested looking into why I was B12 deficient in the first place? No! Last February, I had an IF test, which came back as Normal ( not positive or negative) and that was enough for them to say ( and I quote the GP) that there is no problem with my gut and my gut can absorb the B12 - so, I had to eat more food rich in B12. When I tried to argue that I do eat lots of food rich in B12,the GP advised me to cook the meat less. Little did I know then to reply that the B12 is a vitamin that doesn't get destroyed by cooking.
I have now decided that I need to take the Active B12 test privately but how long should I wait before the result is not skewed by my 18 injections?
Do you know if the neurologist can investigate the causes of B12 deficiency? Should I be referred to a haematologist? I don't think my GP will be happy to refer me to a haematologist anyway...
I know I will probably have to SI but I don't want to jeopardise my appointment with the neurologist and skew any blood tests. On the other hand, I don't know how I will cope with the numbness in my left arm & leg.
Thank you for your help and ... Merry Christmas!