I would like some advice please.
Last June 2016 my vitamin b12 levels were low of 156 also my folate was low (unsure on the number) i had 2 weeks of b12 injections every other day and 5mg folic acid prescribed for a few months.
I had another blood test after for coeliac and intrinsic factor which were normal.
They said originally i would need b12 injections every 3 months after that but in Aug 2016 my b12 levels were 700 and they said i no longer needed any treatment and stopped any future b12 injections and my folic acid. My next b12 would have been october 2016.
I felt better (although never 100%) till end of october. I went back to gp and next blood tests showed b12 430, folate 15.4 and vit d 56. No further action.
Still feeling unwell I went back in Jan 2017 b12 was 377.
Again in March 2017 they only retested the vitamin d which came back at 24 and i was prescribed supplements for a month. I was now referred to the chronic fatigue service's for an assessment as my levels were normal for b12 and the gp said although there's an obvious decline in b12 levels this did not matter.
I had my CFS assessment tuesday and she said i fit the criteria but she wanted the b12 and vit D retested.
In the last week the shortness of breath has got worse on exertion and standing, weakness and fatigue with muscle twitching in my lower legs and some pins and needles to my feet. My b12 is now 277 and my folate is 8.8 and gp says again no further action.
I have other symptoms too of more emotional, irritable, poor sleep, poor concentration, headaches plus more. I felt like i did last year when i was 'deficient'.
Im trying to hold down a full time job but feel im getting no where with my gp. Im not vegan or vegetarian and feel my diet is sufficient and been taking a multivitamin daily since July 2016.
Any help or recommendation to what to do?