Sorry this will be rather long... so apologies but I need help please.
First armed with a copy of results from blood tests of 16 December I asked her who had checed the results as I was surprised that EVERYTHING was NORMAL when in fact my RBCs are above range (as indicated by lab) and my MCV and MCHL are below range (as indicated by lab). GP defensively told me SHE had checked results and "that this was normal for me considering my health issues"!! Obviously not prepared nor caring to help me improve my quality of life and just accepting my health will carry on decreasing till I drop dead!
BLOOD RESULTS and ranges:
Full blood count.
Total white blood count: 6.38 10*9/L (4 - 10)
Red blood cells: ABOVE RANGE: 5.24 10*12/L (3.8 - 4.8) Outside reference range
Haemoglobin concentration 140 g/L (120 -150)
Heamocrit: 0.432 (0.36 - 0.46)
Mean cell volume: BELOW RANGE : 82.4 fL (83 - 101) - outside reference range
Mean cell haemoglobin level: BELOW RANGE : 26.7 pg (27 - 32) -outsite ref. range
Mean cell haemoglobin concentration : 324 g/L (315 -345)
Platelet count - observation : 232 10*9/L (150 - 400)
Neutrophil count: 3.95 10*9/L (2 - 7)
Lymphocite count : 1.89 10*9/L (1 - 3)
Monocyte count : 0.4210*9/L (0.2 -1)
Eosinophil count : 0.08 10*9/L (0.02 - 0.5)
Basophil count : 0.04 10*9/L (0.02 - 0.1)
RETICULOCYTES. Specimen: blood
Percentage nucleated red blood cells : Not detected
Nucleated red blood cell count : Not detected
Serum Ferritin : 43 ug/L (30 - 400)
Serum vitamin B12 level : 434 ng/L (197 - 771)
Serum Folate : 7.5 ug/L (3.89 26.8)
Parietal cell autoantibody level : Negative
Serum tissue transglutaminase level : 0.6 ku/L (0.0 - 5) : coeliac serology negative
Coeliac disease unlikely at present time (sensitivity 96%), provided patient is taking a normal gluten diet. If patient known to have CD. this TGA level indicates adherence to gluten free diet.
I told her I felt I had probably been wrongly diagnosed with Vaso vagal syncope a year ago, as I only tersted mildly (and most people put through through Tilt Table Test would, as have been told by cardiologist and neurologist seen privately) and that my fainting episodes are more likely due to fact my RBCs have a poor haemoglobin uptake as shown on blood results, and a B12 and Folate deficiency. She said B12 not low and Ferritin and Folate were ok.... I pointed my levels were very close to the minimum levels of ranges (especially Folate and Ferritin) and that taking into account how ill I have been feeling for past 15/18 months (really before that time) and getting worse with loss of balance, tinnitus, dizziness, the fogs, strange headaches, confusion EXHAUSTION, no energy at all, breathlessness, the need to urinate frequently, my heart behaving strangely, etc. and said I would like the chance of being given B12 injections to see if it made any difference, stating B12 is a water soluble therefore cannot cause any harm. She then said she'd consider it for a period of 3 months but that she would discuss it with her colleagues and let me know by letter....
Got letter the letter the following day: ..."I had a chance to discuss B12 with colleagues. CONSENSUS was to see if there was a response to B12 by giving ONE injection dose and then seeing what happens to blood work at 2 weeks..... Please phone nurse to make appointment.etc..
Obviously this is not going to work and give them the right to say NO need for B12 as no real improvement. Dis not phone nurse but she phoned me today (25/01/17) at request of GP. Told nurse there was no point in this useless experiment. Seeing GP on 2 February....
Also said to GP I should see an haematologist to which she replied he would not see me with such results! Could this be true when there is an overproduction of red blood cells and that they have a diminished uptake of haemoglobin? I am puzzled and seriously worried... HELP please.
When I saw her last I had many photocopies of guidelines for B12 requirements/symptoms, having highlighted my symptoms ... she did look at them briefly (looking fed up) but NOTHING is happening.
As I have an appointment with her on 2nd February I would truly appreciate any support and guidance as how to proceed now with her regarding B12 and requesting further investigation regarding the state of my blood cells before I become more seriously ill. Am very concerned and scared and feel totally ignored by GP. They are all the same at the practice....
When I said I wanted/needed the cause(s) of my problems to be found... she said "investigations must son come to an end"....!!!! I have seen a cardiologist, neurologist and ENT consultant privately and am going to see another cardiologist privately at the end of February. I had to do all the research and push her to refer me....
I also take thyroxine (100 mcg and 75 mcg) on alternate days, have done so since I had a partial thyroidectomy (nearly all of it removed really) in 1980. Have not had very recent tests done regarding this.
Thank you for taking the time to read this epistle.... and your help in trying getting through to GP.