For anyone suffering mysterious symptoms, despi... - Thyroid UK

Thyroid UK

141,269 members166,541 posts

For anyone suffering mysterious symptoms, despite thyroid treatment. It's the explanation why B12 deficiency is missed. Don't miss this.

auldreekie profile image
24 Replies

youtube.com/watch?v=BvEizyp...

Written by
auldreekie profile image
auldreekie
To view profiles and participate in discussions please or .
24 Replies
PinkNinja profile image
PinkNinja

Thanks for reposting. This is a great video that makes a very serious point!

auldreekie profile image
auldreekie

The Deputy Chairman of the BMA Dr Kailash Chandy OBE has tweeted it ! Let's hope our GP's are tweeters too!

nostoneunturned profile image
nostoneunturned

Thanks, auldreekie, riveting video, thank you so much. More than interesting to see the people who figure in "Could it be B12?" by Sally Pacholok and Jeffrey Stuart tell their terrible stories and to see JJ, whose diary in his own words is in "Pernicious Anaemia: the forgotten disease" by Martyn Hooper, chairman and intitiator of the Pernicious Anaemia Society.

auldreekie profile image
auldreekie

I got started on B12 afer BBC Radio 4 program 'Inside Health' mentioned Martyn Hooper and the new Active B12 test at Guys.

I just can't help thinking of all of the unnecessary suffering. I lost my Mum last year, she had dementia and was on a lot of those drugs (I knew statins were a problem but I didn't know about Metformin) She was also on folate....

Lets hope our GP's get the message soon.

shaws profile image
shawsAdministrator

That was a great informative video. I do have P.A as well as hypo and my mother died through neglect by her GP.

I am sending this video to everyone I know.

auldreekie profile image
auldreekie in reply toshaws

Brillian Shaws! The GP's aren't going to know what has hit them!

Glad you got diagnosed though, were you well informed or did you get lucky with a good doctor?

Sorry to hear about your neglectful GP - I bet he is still a GP though?

shaws profile image
shawsAdministrator in reply toauldreekie

My Mother was on her injection since she was 52 plus folic acid. After about 18 years her GP told her her bloods were fine now and didn't need any more injections but to keep taking folic acid. Both my sister and I said 'that's great' little did we know. Eventually, despite going to the surgery frequently no-one queried the GP's decision (nurses etc) and she died of stomach cancer.

Myself, I have regular injections and always about 1,500 to 2,000. In Nov '11 it was 389 and I told my GP that was unusual for me but he insisted it was normal range. He wouldn't give me a referral letter for an Active B12. I said I cannot be in the normal range as I have P.A. anyway I started on sublingual too but my range was still about the same this year but another GP has given me a referral for Active B12 so am waiting as I just had an injection and B12 still not above 500.

I was fortunate to have a great specialist who did all sorts of tests for another complaint and discovered I had PA.

Thyroid UK have Martyn's book available for sale. I'd post the link but can't get on the TUK site right now for some reason.

Did you know that you can Facebook like and also Tweet open posts on this site? Just under the original post you should be able to see 'Tweet' and 'Like'. :-)

Louise

x

shaws profile image
shawsAdministrator in reply to

I don't Tweet or Facebook but I pressed Tweet nothing happened.

in reply toshaws

Should have taken you to Twitter? It does for me.. :-)

Lx

shaws profile image
shawsAdministrator in reply to

I opened this box first and then I went up to the Tweet - it worked this time?

RedApple profile image
RedAppleAdministrator in reply to

Link to Martyn Hooper's B12 book on Thyroid UK website:

Pernicious Anaemia: The Forgotten Disease

thyroiduk.org.uk/tuk/tuk_sh...

in reply toRedApple

Ta

x

flatfeet1 profile image
flatfeet1

So does thiroid disease cause vitamin B12 deficiency .....or does vit B12 cause thiroid disease?

in reply toflatfeet1

Hi flatfeet

Could you post this as a new question? I'd be interested in some of the answers and I think this will be lost if it stays in this thread...

xx

flatfeet1 profile image
flatfeet1 in reply to

Hi Liza Sahara

Yes no prob ....thanks for advice

flatfeet1 profile image
flatfeet1

Sorry if this is a stupid question,........ Im a newbie and am still learning.......BRILLIANT video though

auldreekie profile image
auldreekie

The problem is some/most thyroid disease is autoimmune which means other body systems are affected. The situation for B12 is the production of the required enzymes from the pancrease is impaired and proteins (WHERE MOST B12 IS FOUND) opps sorry for the caps njot shoulting just rushing! can't be digested properly.

sarahstevenson profile image
sarahstevenson

Thanks auldreekie really helpful video - explains even more about why my mum had such a rotten time throughout her life! I have been told by homeopath I am B12 deficient despite normal bloods will keep a real interest in this one. Might explain many of my sons signs and symptoms too - lots to think about cheers!

rustysmum profile image
rustysmum

Very interesting video - thanks for posting.

Helenabc profile image
Helenabc

Thank you for posting the video. Apart from my own health, I think my friend may have B12 deficiency!

Holmeschild profile image
Holmeschild

Everyone needs to watch this - and ALL doctors & med students especially.

Ana_conda profile image
Ana_conda in reply toHolmeschild

If every person on this forum emailed the video link to JUST ONE GP, endo, neurologist, psychiatrist, psychologist and learning specialist, you would start a revolution (heh,heh-I adore revolutions!)

Holmeschild profile image
Holmeschild in reply toAna_conda

Agreed!

Not what you're looking for?

You may also like...

Why liothyronine treatment is opposed - it's the money, folks

This paper lets the cat out of the bag by openly promoting lessening of liothyronine prescription...
diogenes profile image
Remembering

TPO is 74. T4 13.9. TsH 0.74. I'm suffering hypo symptoms. Why won't they offer treatment?

Hi people, I'm new to this forum but am a member of the brain injury forum. I'm curious why no...
Tinks101 profile image

Don't understand why my T4 keeps going down on same dose and my T3 is still high despite reducing the dose...

Hello, Please could someone shed some light on my recent blood tests? I take 150mcg levothyroxine...
Zazbag profile image

NEW ACTIVE B12 TEST - DON'T RELY ON GP BLOOD TEST FOR B12 STATUS IT ISN'T THE WHOLE STORY AND B12 IS VITAL TO HEALTH

http://www.gsts.com/new-tests.html I thought I'd better post this as new message as I keep...
auldreekie profile image

Letter to PSNC bringing Tiromel to their attention and asking for an explanation as to why this cheaper product is not available on the NHS.

Please find below a copy of a letter I have just sent to PSNC. Please feel free to copy and paste...