Hi. I am new to the PA society and need some advice.
I would like to know where I can go to get tested for pernicious anaemia.
I have suffered from numb hands and feet, tiredness and dizziness for at least ten years. About 4 years ago I began to suffer from severe stomach pains. About a year or two ago I went to my GP regarding my stomach problems. After being initially told I had IBS I was eventually screened for B12 deficiency and the results showed a level of 114. I was not told what this meant, but my GP informed me that I needed B12 injections for the rest of my life. She also made a referral to Gastroenterology. I have now been having B12 injections for over a year.
Since then my GP has retired. The gastroenterology consultant informed me that I have constipation and cannot find a cause. He also informed me that dizziness and being tired are unlikely to be due to my low B12. The consultant written to my GP stating that he thinks I have pernicious anaemia and that he requested a test for this but it was rejected by the lab. He has also rechecked my B12 levels in April which were recorded as being 540. The consultant has now written to my GP stating that he thinks I have PA, but there is nothing wrong with me and that as my B12 levels are now normal I no longer require B12 injections. He has suggested that all I require are laxatives and to drink more fluid.
I am aware that other blood tests have been completed. The consultant/ hospital will not tell me the results. The doctors at my GP surgery will not tell me what the tests were for or the results as ‘it’s nothing to do with them as the tests were completed by the hospital’.
I’ve been feeling better since having the injections, although I still suffer dizziness and tiredness. I’m really worried that if I go back to my GP they will stop the injections. I just keep going back to the nurse and have not told her about the letter from the consultant!
On top of the three monthly injections I am also taking B12 tablets, B12 oral spray and folic acid as my symptoms return about 4 to 5 weeks after my injections.
Any advice would be gratefully received. Thanks.