Hi, This is a great website and forum and the information here is so helpful
I am hoping for some advice as I really don't know what to try next.
I was diagnosed with hyperthyroidism shortly after the birth of my second child 10 years ago.
For the past ten years various endos have been struggling to get the dose of thyroxine right i.e. blood tests within the acceptable range with minimal side effects. I seem able to tolerate thyroxine for a few months (in varying doses over the years!) and then palpitations start and it's back to square one, reducing the thyroxine until they stop and gradually reintroducing it again and so the cycle continues...Finally, last year I was diagnosed with Pernicious Anaemia. I hoped the diagnosis would explain why I was feeling so bad, (sore tongue, palpitations, exhaustion, tingling, feeling 'wired' and trembly, foggy brain, irritability etc.) and a couple of weeks after the loading doses were given I did start to feel better. I now have the standard injection every three months. After the last one I didn't feel better and have continued to deteriorate and now 9 months after the diagnosis all the old symptoms have come back. Now I just don't know if it is thyroid or PA related. Could some of my difficulties with tolerating thyroxine actually have been PA in the background? I am going to see my endo (who diagnosed the PA) next week and am really hoping for some feedback from here so I know what questions to ask him and have some ideas about what to do next.
My latest blood results are TSH 5.86 / B12 663 (six weeks since last jab) Folate 20 / Ferritin 40. I am taking iron regularly to get the levels up and it is working. Just for info, I don't have ANY caffeine (haven't done for 30 years..not even chocolate!), don't drink, have stopped eating wheat and am veggie. I have been exercising regularly over the past year but have had to stop as too tired and any exertion exhausts me. Any suggestions very gratefully received. Thank you