I'm new and I was diagnosed with PA in 2006 after suffering 30 years with anaemia related symptoms and not getting any relief from medication.
At present, I am feeling pretty low and feel like I am going mad, I say one thing but apparently I say something completely different, I feel detached from everything and I am struggling to do the simplest of things.
I have B12 every three months, my last being in February, my GP refuses to give me more because he says my levels are too high. I have tried to explain the reasons why I need them regularly but he does not know much about PA and my consultant is useless and does not want to listen.
All I want is someone that I can sit down with face to face and get answers, I don't think that is too much to ask and there are no support groups in my area (Essex). I am seriously considering setting up a group.
Sorry to moan but just totally exhausted and fed up.