If people knew... what Parkinson's is. - Cure Parkinson's

Cure Parkinson's

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If people knew... what Parkinson's is.

parkinsonshereandnow profile image

If people knew how hard, how very hard Parkinson's can be, it would help us spread this information. Okay, not all of it, but not even vitamin B9 to control the neurotoxic homocysteine, just the right amount of vitamin B6 in 10-25 mg per day as indicated in the levodopa prospectus, or vitamin D to prevent and slow down the disease as much as possible? These are things that are as obvious as mountains that someone finds on the way. How many celebrities, how many scientists have I written to, and they haven't even answered.

If people only knew how easy it would be to help today's sick people to lead a much better life and almost stop them from getting worse: but studies are accumulating (vtamin B1, vitamin D3, vitamin C, folic acid, glutathione, magnesium, B12) and indifference, even more so.

If people knew how easy it would be to help those who are starting out, to turn their disease into something perfectly controllable (just by lowering homocysteine, restoring glutathione and providing the appropriate vitamin D3 - which we still don't know how much it is, due to lack of studies, but we can deduce it from existing studies: 1200 IU a day, seems like the minimum - unless the doctor's judgment is better than ours. Before taking levodopa, maybe plenty of B6 and avocado.

If people knew how easy it would be to raise awareness of people who may have a genetic predisposition or a history of dangerous events (certain drugs, brutal stress that is difficult to handle, insomnia, constipation, etc. ), with campaigns of green tea polyphenols in drinks and foods, all the B vitamins, vitamin D supplements and teaching the population to replenish vitamin D reserves by taking the sun correctly, resveratrol, vitamin C from foods and supplements, magnesium in fertilizers, information in prime time TV series, etc.

If people knew what Parkinson's was, as I do (and millions of sufferers and family members do), they would be eating nothing but carrots and tomatoes all their lives, if it were proven that it could cure Parkinson's, and if this were true and not just an illustrative and exaggerated example.

If people knew what Parkinson's was, they would not try to make money on the health of a mother who does not know how she will care for her two small children in the future, of a son who sees his father fade away, hunch over and have terrible nightmares, or of a young man who sooner than anyone should feel the beast's paw, already feels the disease lifting the walls of Cavafis or the bars of Rilke's panther cage.

And I put all this in because today we can avoid it. This was Parkinson's seen with 19th century eyes still in 2020. And not with the fresh, revolutionary vision of hundreds, thousands of studies that teach us how to "starve" the Beast and those who have given it their souls.

Like in the memories of the poet Ana Ahmatova in her "Requiem", of a terrifying force:

"INSTEAD OF A PROLOGUE

In the terrible years of Yezhov I stood in line

For seven months in front of Leningrad's prisons.

Once someone recognized me. Then

A woman who was behind me, with her lips

Bluebirds, who naturally had never heard my name,

He woke up from the numbness that was common to all of us

And he whispered in my ear (there we all spoke in a low voice):

-And you can describe this?

And I said:

- I can.

Then something like a smile slipped onto what had once been his face."

The tragedy that Parkinson's patients experience every day is of such magnitude as the suffering of that "Soviet" people, of whom Akhmatova spoke. I know what I'm talking about. They are not studies, they are experiences from then and now, some that I lived and others that I read about every day.

I insist that it doesn't have to be like that anymore. It's up to us to say: "it's over. That's enough." And to act with courage and prudence. But not a single step backwards.

In my own way and with my many limitations, I too will try to "see it all" and "describe this".

And no, however much you insist, no: two and two are not five. Neither were they in the 19th century nor will they be in the 21st. Not as long as we can avoid it.

No one can say they didn't know.

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parkinsonshereandnow
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5 Replies
park_bear profile image
park_bear

Understanding B6 toxicity:

healthunlocked.com/parkinso...

How much B6 to take and when:

healthunlocked.com/parkinso...

pdpatient profile image
pdpatient

Hi Jesus, first time I have come across your profile and your posts. Love your poetic style.

RKM

parkinsonshereandnow profile image
parkinsonshereandnow in reply to pdpatient

Hello, RKM. Thank you.

I realised some time ago in my Spanish group since 2012 (a good "sample" of more than 3000 patients and family carers) that it was necessary to use powerful metaphors and images to make more understandable what I had taken 20-25 years to understand, to realise.

Labyrinth, jungle, puzzle, etc. I was very inspired by the scene of the poem "The Panther" by Rilke in the famous film "Awakenings" or the poem "Walls" by Cavafy.

Walls

With no consideration, no pity, no shame,

they have built walls around me, thick and high.

And now I sit here feeling hopeless.

I can't think of anything else: this fate gnaws my mind -

because I had so much to do outside.

When they were building the walls, how could I not have noticed!

But I never heard the builders, not a sound.

Imperceptibly they have closed me off from the outside world.

Constantine P. Cavafy

On this site I am learning a lot and I have to help to make it understandable for 99% of the Parkinson's world, of which my group is a small piece of the puzzle.

parkylot profile image
parkylot

I appreciate what your doing, an alternative approach to the reality of PD.

We’re absorbed with our predicament.

Keep posting poems Thanks Joey

gwendolinej profile image
gwendolinej

Thank you 👍

Gwendoline

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