Hi everyone wow didnt realise so many people suffered from this it's an eye opener!!! Yes gp tend to just say its sciatica when its actually piriformis my advanced physiotherapist diagnosed me. Still feel knots in my buttock terrified it sets off again and now I'm breaking out in psoriasis this is new to me it spreading like wildfire!!! Any suggestions to help this would be appreciated xx
Piriformis : Hi everyone wow didnt realise so... - Pain Concern
Piriformis
Hi Betsy50
Sorry your having to go through all that, I have sciatica on my left hip and when its painful its excruciating, but when I went to the hospital the doctor prescribed me Co-Dydramol 1 x 10mg/500mg every 4 to 6 hours no more than 8 in a day (you can go over slightly if you need to) I have it on my repeats now and I find these are really good and once you get it under control you can reduce them until you feel that twang coming back again, I try and leave them out weekends but they are there if you need them, Hope this helps for you
I highly suggest you see a dermatologist for the psoriasis before its out of control.
Hi batty1 I called dermatology to try get a quicker appointment but they said they couldnt get me in earlier so I asked to speak to someone she bluntly refused the nurse at my healthcentre wasnt too happy this morning when I told her I attend dermatology for another skin condition and dont see them until may but I'll be putting in a complaint because as you say its spread like wildfire!!! Thanks for your support much appreciated
Im assuming you have psoriasis and this isn’t a new and undiagnosed issue? If you have psoriasis do you have any old medication (lotions) you could use until your appointment… you could go to the store and purchase (Tgel extra strength coal tar shampoo) and use it like a body wash.
The Poster above me is probably correct stress probably exacerbated your psoriasis or if you have recently been sick that too can cause a psoriasis outbreak.
Hi batty1 as thanks for your support. I've bern under terrible stress with the pain from piriformis I suffer chronic pain already and have fibromyalgia but the pain from this has truly been horrendous no sleep crying all through the night. It actually all started weeks ago I took a real real bad cramp in my calf then next thing I had piriformis for weeks now.
I feel for you thats for sure and can relate 100% …. Did you always have psoriasis?
Hi batty1 I only ever had very tiny bits but boom this has came from nowhere but it's real bad in my family
Unfortunately Psoriasis never goes away and you probably should see a rheumatologist for possible psoriatic arthritis that could be the root of your Piriformis also its very common for people with psoriatic arthritis to be misdiagnosed with everything under the sun except the true culprit (PSA) because in my experience most doctors and some rheumatologist lack any understanding about PSA and because PSA had no real test (bloodwork) the doctors label you with OA and everything they can think of which is super bad if you have psoriatic arthritis.
You should also get a complete vitamin panel if you haven’t already and see if your lacking vitamins and Psoriasis is also notorious for causing havoc on thyroid hormones…. Im living this nightmare as we speak!
Aw sorry to hear your luving this too it's awful. Funny enough it was a rheumatologist who diagnosed fibromyalgia but I swear there is something more to this I fought with gp for years and it was my advanced physiotherapist who referred me oa on hands but you know your own body dont ye ?
Fibromyalgia is a very common diagnosis for psoriatic arthritis doctors can’t get out of their own way (If you have psoriasis or family history) your chances of getting psoriatic arthritis is 30% and it usually come knocking for most of us when we hit 50 years old I believe I had very mild psoriatic arthritis my entire adult life but because I was a runner and a fitness professional every ache and pain was caulked up as doing too much need to take breaks more often (Agh) this attitude from the medical professionals has destroyed my health I spent almost 2 years stuck in my house because my PSA (undiagnosed at that time) was so painful I could hardly walk or get up from a sitting position…. Its the craziest thing I have ever experienced in my life and because the diagnosis and treatment were delayed for so long it’s destroyed my health (true) I still struggle with walking, standing and now bending because my lower back clear into my butt cheeks hurt something awful … now Im worried about having ankylosing spondylitis .
Hi omg that all sounds very familiar to me those symptoms match what I am feeling. Like this morning the piriformis hit me and I had to drive to see nurse boy did it hurt !!! Who actually diagnosed you then ? I'm so sorry to hear about your bad experiences I've had a few myself over the years I blame the idiot of an orthopedic I seen in my early 20s over an 8 year period he never once sent me for a scan until it was too late rushed for private mri scan due to cauda equine syndrome so I'm very wary of orthopedic now and I will argue my case if I need to !!!! Its nice to speak to someone who can relate to each other thanks for listening
Your welcome it is nice to talk with others that “get it”.
I was searching for and answer to my crippling pains for 2 years when I was finally diagnosed with PSA by my 4th Rheumatologist who I actually sought out on my own she specializes in psoriatic arthritis and does research (Dr. Ana-Marie Orbai John Hopkins University, she has videos on Youtube) she only takes you after reviewing your medical history and determines YES you could have PSA .
My PSA flare (unknown to me) started because of my thyroidectomy and removal of my treatment for psoriasis prior to my surgery….. deadly combination that I have been battling for 7 years now …. Its crazy.
Think I'll need to be asking more questions on this tbh. You've had a real tough time but like your attitude just got to keep going some days good some bad. I lived with back pain for over 30 years operation in 1999 got 2 years pain free then boom back flare ups awful on morphine and gabapentin duloxitine muscle relaxant diazepam and other meds. Great getting old lol . The people on here are so very nice to speak to