crps (complex regional pain syndrome)

[katie-louise]

Hi my mum suffers with crps. i think its about 3 years now. she has type 2 and getting worse as its spreading. Now to add to it she is loosing her hair she has none on top.

i dont know what i want people to tell me

or what i should do or say.

i just want my old mum back. not a bedridden lifeless body

[Bananas5]

Hello Katie Louise

There are nmany people on this forum who suffer with CRPS - don't know if you have read any of the posts?

You don't say how old you or your Mum are or if you are looking after her? She is lucjy to have you caring abou her.

Presumably she has received medical attention and us on pain relief? Maybe this needs looking at again? It is a horrible extremely painful condition and hope we can give you so,e support.

Pat x

[MoniqueRichards]

Did you bring your mum for a follow up check up? Or ask for a second opinion? Sometimes if you are not satisfied with the treatment that your first doctor gave you, you need to ask for another professional advice. She may be prescribed another set of medications, depending on her most recent condition.

[nedd]

Hi Katie

Watching someone that you care about cope with a life changing condition is life changing for you too. And it is tough for both of you.

I can only say that the things that help me. Are to feel I am believed when I pluck up courage to say how I feel.

A smiling face and someone who knows me and can be patient.

She will have much going on in her head.

Chronic conditions require vast amounts of acceptance which is NOT easy for any of us.

I want my old me back and so does my family.

But we can and do find a path sometimes we fall down a ruddy great hole sometimes the hill is steep but sometimes we wander into into a field filled with peace and small golden moments. It's just a matter of spotting them.

And in the words of a dear friend making the best of a crap hand.

Throwing you and your mum a sprinkling of star dust through space hope it will light the edges of you despondency.

Let us know how it goes.

Are you a young carer chuck?

Ned

And have you talked to her about how she is feeling and how you can help.

Also what she can do to help you.

[Clycat]

Just be there for her and let her know that you are always on her side. That has to be the most important thing and I'm sure you are already doing that.

If she is not already under the care of a pain clinic, demand an urgent referral for her from her GP.

And make sure she is kept warm, I am much worse if I get cold.

There's lots more I could say, let us know if you have any questions.

Take care,

Jo

[brimstone1]

I myself was diagnosed with CRPS. And underwent a Laminectomy also then a sympathetic nerve implant, after eight months my pain levels have dropped but not to my expectations. (Have been told they were to high) now on more pain relief pills and patches but mainly rely on careers and family to help me control this awful condition. Just my family and friends have helped,please approach your Doctor and ask for urgent referral to a pain clinic whom may help, also look for help for yourself as a career as this can be stressful for you as well. Try to stay positive and remember people are out there to help

[brimstone1]

I myself was diagnosed with CRPS. And underwent a Laminectomy also then a sympathetic nerve implant, after eight months my pain levels have dropped but not to my expectations. (Have been told they were to high) now on more pain relief pills and patches but mainly rely on careers and family to help me control this awful condition. Just my family and friends have helped,please approach your Doctor and ask for urgent referral to a pain clinic whom may help, also look for help for yourself as a career as this can be stressful for you as well. Try to stay positive and remember people are out there to help