I’ve been diagnosed with Hashimoto’s (autoimmune disease) and an underactive Thyroid.
Before I got diagnosed I suffered with terrible neck stiffness and the Endocrinologist said it was due to Epstein Barr Virus. This never went despite having anti virus tablets. I tried physio, chiropractic, acupuncture with no success.
In fact it was the acupuncturist that suggested I have my thyroid tested.
Once I started thyroid medication my neck stiffness did disappear, but I wasn’t well at all on thyroid medication, and I’m still not
Now my neck stiffness and pain has come back worse than ever.
This also included a really intense sharp headache that made me stop what I was doing. It wasn’t consistent, but if I moved my neck, walked, it felt my neck was too heavy on my body. The only relief I get is laying down.
Only paracetamols would take the edge off the pain.
I have blocked ears and ringing in my ears as well. It got so bad a few weeks ago that I went to A&E as struggled to obtain a GP appointment. They looked in my ears and said I had an ear infection and to take antibiotics. My ears didn’t hurt or were leaking. I took them and my ears were still blocked and my headaches and pain become more intense.
I had managed to obtain a GP appointment, but my family were concerned I went back to A&E.
This time they took bloods, and gave me an brain MRI Scan.
My bloods came back normal, and my scan on my brain normal. They sent a consultation from ENT that said I didn’t have an ear infection, but couldn’t explain my ears being blocked and put it down to a virus infection, despite the first doctor telling me I had an ear infection and prescribing me antibiotics.
They were going to admit me and do a lumbar puncture, but after a further physical examination, decided to discharge me and arrange an outpatients MRI of my neck.
They gave me some medication to take naproxen and pregabalin.
The pregabalin has made no difference at all, In fact it made it worse, but the naproxen does help.
I had a massage today and I was told that all my muscles were tight, neck, shoulders, back. It gave me some relief but my pain is coming back. The headaches aren’t as bad, but my neck feels so tight and stiff, which then leads to tension headaches.
My neck stiffness is as soon as I wake up in the morning until I go to bed at night. The headaches are at the front of my head and feels like a tight belt around it.
Can anyone offer me advice please. Am I being fobbed off, should I ask for an X-Ray. I just feel Ive gone from taking no medication to taking loads.