CSF Leak help!: Hi everyone. I'm writing... - Pain Concern

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CSF Leak help!

SherilynWileman1 profile image
3 Replies

Hi everyone.

I'm writing because I suspect that I am suffering a CSF fluid leak but need help. I will first start with all of my symptoms, please comment down below if you have experienced any of these in relation to a CSF leak:

- When leaning forward A watery substance flows from my left nostril only. It has the consistency of water and I cannot control it or stop it from coming out.

- I am suffering what I can only describe as small seizures particularly in the morning and night. It feels as though my brain is being "pushed", "flipped" with immense pressure but no pain.

- I suffer pain around my eye sockets especially when moving my eyes. My vision is blurry and "squiggly". Light also hurts my eyes can can trigger the sensation in my head.

- My nose and ears "click"

I have visited the GP twice and both sides they have dismissed it as sinusitis as I have a history of the condition. However I know it is different this time as sinusitis makes a very thick, green discharge come out of my nose and does not give me dizziness and aura sensations in my head. The symptoms are getting worse and today a large amount of fluid came out of my nose. Is there anything I can do to convince them to carry out further tests? Would it be worth trying to catch the fluid for a sample to be taken? Has anyone ever tried the "paper bag trick"? This problem has been ongoing for two weeks and I have not suffered an injury and there is no obvious reason why a leak should occur. I do have chronic sinusitis and wondered if the pressure of this condition could have caused a leak. Any advice would be great please!!

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SherilynWileman1
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3 Replies
ssdw1958 profile image
ssdw1958

Time for a real doctor a ear, throat and eye 👁 doctor.

waylay profile image
waylay

Go to A&E! Probably not CFS leak, but if it is, it's obviously very serious!

dessireaa profile image
dessireaa

Did you ever find out what this was? Having the same situation go on with me for more than 4 months

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