8 years and still waiting for answers!

Hi, I am new here and am seeking some support for my pain. In a nutshell, I have been suffering with pain for 8 years now on a constant daily basis. I had a hysterectomy 11 years ago which was fine but then developed pain and urgency in my bladder area. I had a cystocele repair 7 years ago, but that did not resolve my problem.

Since then I've been to 3 specialists & diagnosis has been incomplete. Possible overactive bladder but tests said no,possible interstitial cystitis, taken the drug Elmiron to no avail, then saw a top uro/gynae consultant in London who did arrange for an MRI. This and other tests confirmed that my bladder and functions were fine but I have yet another prolapse(vaginal vault) now plus an intususseption in my bowel was discovered.

After another meeting with the colo-rectal consultant in Newcastle he said I don't need an op on my colon as I don't have the symptoms that go with that but he thinks I need an op on my pelvic floor to pull it all up (a mesh sling type of thing) but I've heard bad things about the mesh.

Anyway currently, I am awaiting the results of an MDT meeting with URO-gynae ( it's been over a month now) have had a long chat with my go as I need a "go to person " in all of this & have asked for and now got an appointment with a pain clinic in November over in Newcastle,

I feel the pain is getting me down. I get burning, stinging, sometimes a dull pain and constantly feeling I need to go for a wee, as the pressure is always there. I try to get on with my life, I work part time but it does impact on my quality of life and enjoyment.

For dire emergencies they have given me oramorph to take but that's just a sticking plaster approach and I hate taking it.

Just wondered if anyone else out there has got or had similar problems and feel it's a vicious circle that just keeps going round and round and not getting anywhere!

Sorry for the long ramble but I had to try to give you a picture of my pain.

Thanks in anticipation,

Sammydog

[Bananas5]

Hello Sammydog and welcome on board.

Never think you are alone in dealing with chronic pain. Frustrating doesn't come close to how we all feel at times.

I personally can't answer your questions although I will say think carefully about NOT taking meds which may help.. For short term use they can be very effective but do speak with your consultant and sy the script he has given you isn't helping.

There is a pelvic pain forum here which would probably help you far better.

Go have a look, post over there and see what they have to say.

Hope this helps and Good Luck

x