Experiences with

Elmiron

my husband age 63 today is struggling with the pain of both Fibro and IC even though on duloxetine, mirabegron , high dose Gabapentin , tonne of paracetamol …(hospital will no longer supply the Elmiron pentosan polysulphate).

I have recently started Elmiron but too early to say if it's helping yet. I follow a strict IC diet and am also gluten and dairy free. I also have regular physiotherapy and do gentle exercise (yoga, swimming).

Has anyone else had this with Elmiron?

top of that i was constipated. it took me to see 7 urologist to find out the real diagnoses. in 2017 i was told i had a prostate infection. the infection was causing the glans to swell up. after my urologist gave me medication for it. it went away. now im able to urinate on my own. im still taking elmiron

The pain continued although my urine symptoms got somewhat better with Elmiron. I went for a second opinion, not willing to accept that I had to be snowed by meds or in pain. The consulting gyn did not even do an exam.

I also have undiagnosed ICS and have been on elmiron for it. Anyways, I don't have any solid answers. For months I was on Cymbalta (before my lap) and it helped with the painful pelvic pain, but the side effects weren't worth it so I went off of it completly about a month ago.

(Elmiron works well for me for the interstitial cystitis). Some mild antibody issues related to gamma goblin levels showed up in my blood work a year before the Hashimotos was diagnosed . I also have ocular myasthenia gravis and asthma which are both autoimmune conditions.

Possible overactive bladder but tests said no,possible interstitial cystitis, taken the drug Elmiron to no avail, then saw a top uro/gynae consultant in London who did arrange for an MRI.

I take iron tablets (no issue), Elmiron for the last 7wks (painful bladder syndrome), amtripyline and Seretide. None of these give me any issues. Help!