Need some tips on getting the NHS system to work for me as I have fallen through the cracks.
I have a long history of back pain. Left with chronic back pain daily sciatica, permanent nerve damange (although no test carried out to confirm this), very limited walking ability off work for a few months now on hugh variety of meds including fentanyl patch and oxynorm tablets.
I have no real diagnosis as MRI (which I had to pay for privately a few years ago) was inconclusive. I had to go part time last year and am worried I may lose my job as have had all the adjustments occupational health have suggested and part time was my last chance. Can't bend down to even get milk out of fridge so it may be a while before I can return. My work involves a fair bit of movement but I'm not stuck at a desk so I can move about to suit myself quite a lot, albeit often changing position. I still need to do a lot of walking once a week so I need to be quite fit before I return.
Sorry this is so long - basically I had spinal injections once before the they really helped but have been refused them since, had accupuncture which helps a lot, particularly for sleep, had physio which helped but pain nurse advised not ready for this should try accupuncture to reduce pain first as she knows this works for me, told no longer available on NHS, asked to see consultant attached to pain clinic but no appointments available as I AM HAVING A TEXT BOOK FLARE UP, even though the pain had me almost suicidal over the last few weeks, palmed off with pain nurse to be my contact and explain things but can't get her on phone! Going round in circles and feel the system has washed its hands with me.
I feel I need full tests and updated diagnosis and help to sort out my meds properly as over time they have just kept increasing as my body gets used to each combination. Why does nobody listen and provide a decent service? Help, suggestions please, sorry for the moan.