Severe pain for years

[Babydior1]

I have been having severe pain for approximately 4 years now, I have been to the GP and had so many blood tests for rheumatoid only for the bloods to come back fine, so all the GP does is brush it under the carpet. So last year I saw one of the many locums and was told I have fibro myalgia, but because it was the last appointment on a Friday evening was told to make another appointment So at the end of last year I saw yet another locum and was told they would send a referral to see a specialist to be properly diagnosed, I am still waiting for the referral appointment, In the meantime I am in such bad pain I could murder myself, I take Morphine which numbs the pain but I am never clear of the pain for any one day. Why can't the GP's understand that the feeling that someone is drilling out every bone in body is excruciating pain and that there is only so much a person can take???

Can anyone offer a solution in getting help??

[Rusty8]

Morning baby Dior1 I have same problem as you every single day I am in pain I can’t walk I use a walker to get to loo etc and even that is very painful I haven’t been out of the house 🏠 for a year other than hospital appointments and have used two paramedics to get me there due to not being able to get out of door 🚪 but I am hoping soon a ramp will be put in for me

I’ve been told by pain consultant that I am one of the 20 percent of people in uk that this happens to I am still trying to come to terms with it but it is so painful when I get up no pain worth shouting about when I am sat down I just don’t understand it

Is there anyone out there with same problem to talk to someone would be nice

What are your problems if you don’t mind telling me

Sorry it’s so long but like you there is only so much you can take and I think I’ve got there

I feel like just staying in bed and let the world go around as there is no pain lying on bed

Thank you for reading this

[scholey23]

Hi, you have my sympathy. I too am suffering with excruciating pain. I have tried pretty well all narcotics, opioids and painkillers going since 1989. Finally, after a great deal of research over the internet and the help of a good friend I studied the Medtronic web site. Ultimately I was referred to a pain specialist who knew all about Pain and Medtronic equipment. In 2007 I was given a drug pump inserted just under the skin in my abdomen and a catheter to my spine and I was supplied with a constant flow of morphine to the affected area. Lo and Behold my pain scores went from 10/10 down to a 3/10. My pain levels do vary depending on what I am doing but they have been considerably reduced. This was done in Canada but now I live in Bolton, Lancashire and I made enquiries as to the best place to go for refills of the pump (every 3 months approx) The Walton Neurological Centre is the best and my doctor referred me there. The centre works miracles and if you can get a referral there then go. They have a great Pain Management Course to help you understand all the many processes and problems with pain. Hope this helps. I have made several responses over the last few years and I suggest you read them, they might help.

[dennisp]

Hi my name isDennis and I was diagnosed with ME over 26 years ago. After a few years I started to put on weight and then get muscle and joint pain . The pain was unbelievable I read somewhere,on the internet, that statins can effect some people in this way. I had been put on them because of my weight gain and not being able to exercise to try and lose it . I decided to stop taking the Statins for a few days to see if it made any difference. The difference was unbelievable. Within a few days almost all of my pain had vanished, it was like the sun had come out in the middle of a bleak winter, the relief was incredible. You don’t say if your taking statins ,but if you are ,try giving them a break for a week it might just help. I am still in pain,from the Fibromyalgia however compared to what I was living with before there is no comparison . I would much rather risk a shorter life at the level of pain I’m in now than a long one in in the agony that I was in before.

One side effect that I have found that I have not heard anyone else mention is that you lose contact with all of your friends. Being unable to go out with them or not even being able to talk on the phone because you’re too tired they end up drifting away. You don’t notice it happening you just realise it one day. I also found that some people just don’t believe you can be in so much pain all of the time or feel so exhausted. Unless you’ve been through it you can’t have any idea what it’s like. I used to get comments like Oh everyone get tired or you’re getting older you’re bound to get the odd twinge just push through it. People that don’t have it have no idea. When someone I know has the flu and I say “now you know how I feel every day “ they don’t believe it ,but it’s true ! Also it not only effects my life but it has had a massive effect on my wife and children. My wife has taken them on trips many times on her own because I have not been up to it and ,at my request,even taken them on holidays and I have stayed at home.To say that ME and Fibromyalgia are life changing illnesses is an understatement. I think that if everyone on the planet had it for a month ,to see what it’s like ,then millions of pounds would be put into finding a cure. Because no one can really understand it unless they’ve had it. I really hope that you are taking Statins and that they are the cause of your pain because then you have a chance of a better life. I wish you good health and a pain free life.

[Babydior1 in reply to dennisp]

Hi

No, not taking statins. Hearing from you makes me wish I was, at least it might have given some relief. The only thing that keeps me going is my animals, I can't work anymore as being a body piercer and beautician my body just can not cope. And I know that I could never do the piercing anymore as it would only take a spasm in my back and that would end my 25 year unblemished record.

I do hope you find a way to start enjoying your family again.

All the best and take care. X