I am new here and have been reading through the posts, I am a RSD sufferer and have been for many years, I manage my pain usually very well, but have discovered that a simple thing like a injection can make it flare up, I wrote about this in an earlier post, I am thankful I have a very understanding GP and we usually between the 2 of us get some control, anyway over the years I have had to find different ways to cope with my pain, one way is to close your eyes, imagine you are on a beach watching the sea going in and out, with every wave out, that is pain going away, I am not saying this will work for everyone but it may help someone. I have a supportive partner who does most of the housework and cooking, ( I do have other medical problems to cope with) if I want to do something, I break it up into smaller ways, like say I want to do some dusting, instead of going for it and try to do it all at once, I may do the shelves then rest a while, do you get what I mean. I have also learnt to make life easier for myself, I have a table beside my chair, on this I put stuff I may want that day, like the phone, tissues book ect, I then do not have to keep getting up for bits, in the kitchen we brought a hot water gadget, so all you do is fill it with water, press a button and the hot water comes out, no more lifting a kettle. in the wet room, I have a seat so I can sit and shower, I have a high stool in the kitchen, the seat is a it slightly tilted. this means I can wash up, prepare veg and generally help or hinder.
I have learnt to listen to my body, if it says you are tired, then I rest, if it says the pain is getting worse, then I make sure I rest on my bed, and try to distract the pain, if not I do have oramorph as a top up. My greatest distraction, is my workroom, I love to make and create dolls house miniatures and I find that I can distract from the discomfort for a while, so there you are another tip, find a hobby, something you have to think about, hopefully I have been help to some of you, if anyone wants some advice or just to shout at, feel free to contact me.