I am new here and have been reading through the posts, I am a RSD sufferer and have been for many years, I manage my pain usually very well, but have discovered that a simple thing like a injection can make it flare up, I wrote about this in an earlier post, I am thankful I have a very understanding GP and we usually between the 2 of us get some control, anyway over the years I have had to find different ways to cope with my pain, one way is to close your eyes, imagine you are on a beach watching the sea going in and out, with every wave out, that is pain going away, I am not saying this will work for everyone but it may help someone. I have a supportive partner who does most of the housework and cooking, ( I do have other medical problems to cope with) if I want to do something, I break it up into smaller ways, like say I want to do some dusting, instead of going for it and try to do it all at once, I may do the shelves then rest a while, do you get what I mean. I have also learnt to make life easier for myself, I have a table beside my chair, on this I put stuff I may want that day, like the phone, tissues book ect, I then do not have to keep getting up for bits, in the kitchen we brought a hot water gadget, so all you do is fill it with water, press a button and the hot water comes out, no more lifting a kettle. in the wet room, I have a seat so I can sit and shower, I have a high stool in the kitchen, the seat is a it slightly tilted. this means I can wash up, prepare veg and generally help or hinder.
I have learnt to listen to my body, if it says you are tired, then I rest, if it says the pain is getting worse, then I make sure I rest on my bed, and try to distract the pain, if not I do have oramorph as a top up. My greatest distraction, is my workroom, I love to make and create dolls house miniatures and I find that I can distract from the discomfort for a while, so there you are another tip, find a hobby, something you have to think about, hopefully I have been help to some of you, if anyone wants some advice or just to shout at, feel free to contact me.
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muppet60
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You should never feel guilty about resting, I have been known to stay in bed for a week when I am bad and have not even brushed my teeth for a couple of days!! I am on morphine and have oramorph for break through pain, I was on Gabepentin, this has now been changed to Pregabalin as my pain got out of control, have got to go back to pain clinic for advice. I do have other health problems so it gets a bit complicated when I need other treatment, I have a blood condition, my blood clots for no reason so I have to have regular blood tests and am on warafin.
I try very hard not to get depressed, I try to remain positive, but at times when the pain is really bad, I will sit and cry and would do anything to make it go away, but that is part of me that My family or friends never see, I am my own worse enemy,
do you have family support? or someone you can talk to? I visit here once a day, so |I am happy to chat to you
Gosh your problems seem like mine morphine warfafarin gabapentin
It's nice to talk to you
Yes I have got family support but I have only just told them how bad it is hid a awfull lot from them but had to give in over the last two weeks so trying to sort things out
Have finally got some control over my pain, I can cope with it a lot better, its just like a bad toothache now, been back in my work room, making miniatures, helps to distract me, hope you start to feel better soon x
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