Nabilone for Pain Relief Anyone?

I have taken NABILONE for pain relief for some years. I seem to be the only person I know who uses this, and because it is off license, my GP refuses to prescribe it. As a result, I get it through the Hospital Pharmacy, about 3 times annually.

Is any-one else using it for pain?

DO you find it helpful, and do you find any side effects that are intrusive?

I must confess that I thought it is of minimal benefit, until I stopped taking it, and then found it was actually quite effective! I find minimal side effects, and even some unintended benefits! Anyone out there keeping me company?

7 Replies

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  • Did you lose weight

  • Oh, If Only!

    Nope, I'm afraid that my weight stayed stubbornly at the same level, until last year. when I did manage to lose 10kg last year by dint of a "Modified Fast" type diet, but I don't think it was very healthy, although I did feel fine.

    I have been on Nabilone for a number of years now, and I am just wondering if I am the only person on it! It seems a bit lonely, at present!!

  • Hi never heard of this paimkiller, is it an opiate? Is it a good painkiller? X

  • It's not an opiate, nor even, technically, a pain killer, but it certainly does help the other painkilling drugs to have an effect. It is an artificially produced Cannabinoid, and you are unlikely to get it from a GP, even if the letter from a consultant prescribes it! I am prescribed it in the pain clinic, and I pick it up from the hospital Pharmacy. It is technically licensed for the alleviation of Nausea in cancer patients undergoing therapies, but it was noticed that they required smaller analgesic dosages that others not receiving it. I, and the other users, take it "Off License", but I found when I stopped it, briefly, that the pain was a lot worse, so I am happy to keep on with it!

  • Thanks gor reply glad you foumd something to help x

  • No opiates..naboline is marijuana synthetic drug..hardly any side effects.

  • Such a long time ago, I'd forgotten all about this! I'm no longer taking nabilone, as the pain specialist retired, and the new bloke doesn't believe in it. He doesn't, apparently, believe in Fentanyl either, so it's a good job it's my GP that prescribes it! I have been pressed by two different "pain specialists" to stop using Fentanyl, as it apparently does not work. I, however, find it does work, and am not willing to stop taking it if the offered substitute is....Nothing. Maybe they think I will suddenly find my pain vanishes if I take nothing, but I can assure you that nothing would please me more than to find my chronic pain has gone. I take a dose of fentanyl that works for most of the day, limiting the pain to a level that I can live with, but on 2-4 x daily I need to top it up with Actiq. The best I can say about that is that it tastes better than oramorph. It does limit the pain, but I wish I could manage without it...

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