Haven't posted much recently as softwear Jane is kaput and need new computer too. She has stopped talking to me and lost abillity to spell too. So apologise if I get big and bog muddled.
12 months after coming off Fentanyl and starting on the Oxycontin and Oxynorm road David has had enough. They have never really worked for him and in spite of increase in pain levels is stopping rather than trying an even higher dose. He already takes enough to fell an elephant.
For those starting on the pain relief path - a warning as to why your consultant will NOT start you on a higher dose. Your tolerance builds up and when in more mature years there is nothing left to give you.
Together with an interpreter he is seeing his GP tomorrow. GPs English is excellent but we want to be certain everyone understands what's what. What next? I have no idea. It breaks my heart knowing him struggle to get comfy in bed. To get some sleep and to walk anywhere around our home. Yes the weather does lift him bt it is short lived and he gets tearful that he is a burden. That is something he will never be.
I have heard there are meds to help with the expected withdrawal. No idea what as yet unless anyone else has heard of something? It will be a long road for him. For us. Oxycntin is known to be the mother of all buggars to come off.
Distraction will be hard too. His beloved trains won't be running for a while yet so I have asked him of he would like some fish. No not with chips but he could have some beautiful deep water ones. Fabulous colours and as anyone knows - if you have any animal they need looking after no matter how bad you feel.
So....lets see what Wednesday brings