Fight MPN | HealthUnlocked

Fight MPN

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Jakafi and night

Anyone else on Jakafi/ruxolitinib and have their head “racing” at bedtime? I gu...
ProudHarry profile image

stress and mpn

Hi all is there concrete evidence that stress can raise platelets in ET jak2 pos...
Birdlady2021 profile image

covid

13 neurological, blood, and heart-related medical conditions
hickman46 profile image

Red light therapy - fatigue

I’m curious whether anyone else has been trying red light therapy at home. It‘s ...
Onikemark profile image

Pegasys, EMA application Extension of indication to include treatment of Polycythaemia Vera (PV) and Essentialthrombocytosis

someone forwarded me information on the above subject. Pegasys is mostly used o...
Bariton profile image

what if I stop taking hydroxyurea?

hi everyone, again need some advice. Three weeks ago my platelets suddenly creep...
mustabshra profile image

Hydroxyurea got ET, I am worried to be stuck with it for the rest of life.

Hello everyone, I was diagnosed with ET ( triple negative) 7 years ago, was on a...
mustabshra profile image

PV and essential oils

Hi allJust wondering if I can take essential oils to help with my mood and menop...
MazzaP74 profile image

does anyone know anything about arythmia medication amiodarone

Hello again, I am reaching out once more. I was prescribed this medication and ...
kitttycat profile image

Worry about ASXL1 MUTATION

Hello everyone, I have been suffering from MPN for over 10 years, although I am ...
merlisa profile image

Does anyone but me have long term secondary polycythemia, and what has your treatment and outcomes been .

Over the last 6 years mine has been aspirin and venesections .
Scotch-Irish profile image

jakafi, PV and retinal tears and detachment

in May I had a small stroke and the same day a retinal detachment. I was release...
DDSmiley63 profile image

HU and alcohol

Does anyone with ET taking HU drink wine? Any side effects? Thanks
Jazzman7 profile image

MF from ET

I have early stage MF from ET, and I‘ve had a headache for 12 days, with pressur...
Arthandiwe profile image

DNA test positive for JAK2V617F does this mean I definitely have a MPN?

This result came at random I have zero symptoms so can I have this ene and it m...
happy007 profile image

Update 7.0

Things have been coming along pretty well. Iron levels are gradually increasing...

Non driving gene mutation-ASXL1

I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon ....

Besremi

I am about start Besremi. I just wanted to know how people are doing on it. I ...
KLCTJC profile image

Reason for 2 MPN Communities

Hi all, I had a JAK2 test which came up positive, at the same time my levels ret...

Today is World Blood Cancer Day

Last year at this time I was aware that my red blood cells and platelets were to...
Barbiebreath profile image

An article about understanding CBC’s

https://www.mympnteam.com/resources/understanding-complete-blood-counts-in-mpns
Barbiebreath profile image

Bloodwork today. 😐

I’m only sharing because no one in my world can really relate. Even I don’t kno...
Barbiebreath profile image

Shoulder & arm pain

Hi I have terrible pain in shoulders and down my arms, very painful putting on c...
Getknotted profile image

Risks in taking and not taking aspirin with hydroxyruea, especially when older

I have been taking hydroxyurea since Nov 2020 when diagnosed with Essential thro...
kitttycat profile image

Side effects of Anagrelide

A few weeks ago I posted a msg regarding side effects of Interferon and several ...

Diet - A way to treat MPN's

Has anyone found medical support to treat MPN's with diet?
JoeCool513 profile image

Burning sensation on my feet

Hi, Im 65 with ET, JAK2 since 2013. Since then Im taking Hydrea 1000mg everyday....
Kiziria profile image

RBC Counts decreasing

Hi, Im 65 with ET, JAK2 since 2013. Its been 8 years that Im taking Hydrea medic...
Kiziria profile image

ET and awaiting results

Hi to everyone, Happy Easter! I am awaiting result from genetic testing and ra...
De12 profile image

Burning ankles

Over the last few days my ankles and feet have been burning . They feel like the...
Tingle20 profile image
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Welcome to the Fight MPN community! This is a safe space for anyone affected by myeloproliferative neoplasms (...

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