Burning sensation on my feet

[Kiziria]

Hi, Im 65 with ET, JAK2 since 2013. Since then Im taking Hydrea 1000mg everyday.

Recently I've been having symptoms such as burning sensation on my feet, especially during the night. Did you ever experience such feeling?

Thank you!

[Magentas]

I’m afraid so, it is a common symptom from a condition called Erythromelalgia. It may not progress for you so don’t be too afraid. Have a look at my last post as this is what it’s about…so we can both learn together 😊.

Have you found a haematologist with MPN awareness yet. Are you on aspirin also and are you aware of PEGylated interferon?

[Dream23]

Hi, I'm 44 with PV, diagnosed a year and a half ago. I take rivaroxaban daily and Pegasus Interferon injections. Yes I have had this, which happened seemingly out of the blue about 6 months ago. I had painful burning feet and fingers, which stopped me doing household chores and exercise. I think my blood levels were not being tracked closely enough. But in the end I saw my MPN specialist (not just my local rheumatologist consultant) who prescribed a low dose baby aspirin daily, which worked within hours of taking it! The burning stopped, but after a month I had extreme menstrual bleeding, possibly because of taking two blood thinners. So I stopped the aspirin and the burning has not returned.I hope you can see an MPN specialist and have your blood levels checked.

I really hope you feel better and it doesn't last long. It's disconcerting and can be debilitating, not to mention painful!

Good luck

[Dream23]

I meant to add my doctor called it Erythromelalgia.