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Fight MPN

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ET and awaiting results

Hi to everyone, Happy Easter! I am awaiting result from genetic testing and ra...

Burning ankles

Over the last few days my ankles and feet have been burning . They feel like the...

Hydrea side effects

I am supposed to start taking Hydrea 500 mg/ day for ET JAK2 +. I am concerned a...
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Pain aches interferon

Hi I recently started on interferon switching from Hydrea. I have ET. Since s...

How bad does it have to get?

Hi everyone, My haematology appointment for yesterday was cancelled but on Monda...

Low sodium

Hi I have been feeling user the weather last few days or so. I had blood test do...

Tratamiento Mielofibrosis

Hola, soy nuevo en este grupo. Espero que se encuentren bien durante este tiempo...

Does anyone know if it’s okay to take a COvid vaccine while on hydroxyurea? I have ET with Jack.

Does anyone have information on taking a COvid vaccine while on hydroxyurea? I h...

Anyone else with MDS/MPN suffered compression fractures?

Just found out the pain I have had in my back for over four months is due to com...

Shielded from covid-19

Hi Hope friends on here ,have been sent a letter from there GP advising us to se...

Live ask the expert webinar shortly

Don’t miss TODAY’s important free, live webinar with MPN experts Drs. Michaelis ...

Do we qualify for home delivery of shopping?

Hi All on the Government form on line for getting food shopping delivered , it’s...

Palpitations

How serious are palpitations?

Bone Marrow Biopsy

Hi. I have been recently diagnosed with a MPN, although I don’t know which one ...

Stabbing pain

Hello, I’m new to the group. I’m trying to understand the pain I’m experiencing ...

ET & Statin Usage

Has anyone experienced a reduction in their platelet count as a result of takin...

Patient of ESSENTIAL THROMBOCYTOSIS on medication of hydroxyurea , but gradually RBC ALSO DECREASING !

I am recently on hydroxy urea and hav an okay platlet level ie 5-5,50000 but my ...

Information on MPN

For more information on myeloproliferative neoplasms (MPN), visit: https://www.p...

Community Guidelines

Welcome to the Fight MPN Community for support of Myeloproliferative neoplasms ...

Updates to this community

We want to let you know that as of next week, Patient Power will no longer be mo...

Please Join Our Patient Power Community or Follow On Facebook

Hello everyone- In an effort to streamline our web presence, we will no longer ...

Hydroxcarbamide brusing side effects??

Hiya folks...just recently diagnosed with ET and started Hydroxcarbamide and Clo...

Need info - JAK2 Negative but elevated rbc, elevated hematocrit and hemoglobin. Why is bone marrow biopsy needed?

Hi, I am new to this community. I would like to know what is JAK2 Negative poly...

Constant cough

I was diagnosed 7 weeks ago with ET Jak2 pos platelets over a thousand I'm on As...

Extreme fatigue and Depression

What do you good people do when you get so tired you are mostly in bed and getti...

Hydroxy and Basal Cell Carcinomas

So, I've been on Hydroxyurea now for 6 years and had \"boring skin\" until thi...

Dropping platelets?

Discontinued HU for ET due to anemia Dr said we would monitor monthly bloodwork ...

JAK+ to JAK2- with ET

Latest news from the Hematologist: my JAK2+ from Jan 2012, is now JAK2-, any...

New to all of this:)

Hello Everyone my name is Aimee and I’m from the US. My Hematologist suspects th...

Medication review

Hi all I’m 39 and diagnosed with ET a year ago. My platelets are currently 107...
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