jakafi, PV and retinal tears and detachment - Fight MPN

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jakafi, PV and retinal tears and detachment

DDSmiley63 profile image
3 Replies

in May I had a small stroke and the same day a retinal detachment. I was released from hospital 3 days later directly to an eye surgeon to repair my eye. I developed rapidly growing cataracts as a resulting complication. Last month I had surgery to remove cataracts in both eyes and now am having almost daily tears in my other eye. Has anyone else taking jakafi or who has PV had this same or similar issue’s. I wonder because a friend told me some cancer drugs / gene therapy drugs can cause this complication. I’m still learning. TY

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DDSmiley63
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MCW22 profile image
MCW22

I've not had any problems with jakafi. I have the normal age related slow growing cataracts which started before my pv diagnosis, so not connected to the drug.

zfatherhen profile image
zfatherhen

I have been taking Jakafi for 6 years and no negatives other than a lower hemoglobin, so anemic. Has kept my spleen normal and cleared up my brain fog. Also, got rid of horrible itching but took 3 years.

MissParma73 profile image
MissParma73

Funny you mention this as my eyes have been affected. Had a macular hole which required surgery and now I need cataract surgery. My vision is awful. I have not been on Jakafi but wonder if just caused from my primary myelofibrosis

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