Not really a moan. Diagnosed August 2010. Had chemo surgery chemo, remission for 13months, began Carboplatin in Feb this year, 2nd round had a bad reaction so couldn't have it. (My scan had come back with enlarged lymph nodes in upper abdo). So we decided to wait and see as my CA125s had halved. May 2012 began treatment again as CA125s rose and they are a good indicator in my case. Started on Gemzar and had my first 9 rounds. During the end of those rounds I began retaining fluid and became very short of breath. Was going to Perth in August for a holiday so we decided not to give me any chemo until I came back and My Chemo Doc said she would investigate the Gemzar further. When I saw her on the 6th Sept she said they had decided not to proceed with the next round of nine as it was causing the sob. My follow up scan had shown some fluid below my lungs and the radiographer had noted that it could be treatment related which it obviously was as I have been really good since I stopped. So, it was wait and see again which I have been doing but have been having symptons again so had a blood test and my CA125s have doubled since end of Julys test. Scan showed no more enlargement but lymph nodes haven't shrunk at all either. See my Oncology Doc on Wed so will see what he says. Next step will be oral chemo when I need it. Such a shame the carboplatin didn't suit me this time as it worked so well for me the first time round with the taxol and the first round I had of it this year it knocked my tumour marks down by half after one round. I can be desensitized to another platinum drug but that one we are keeping up our sleeve until absolutely necessary. Who has had oral and how did you find it. I know I will possibly lose my hair again but thats not a problem. Just wondered about the other side affects. Thanks for listening. Plus my pathology report said I have primary peritoneal ca. Chris.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.