Have been reading( lots of the blogs to day as SO much time to do it... I am very disappointed in my body and recovery, but accepting more and more that this is a chronic disease and to be lived with and treated whenever possible.
Diagnosis 3c December 2011, 3 cycles of carbo/ taxol prior to surgery. Ca 125 at 2089
Count dropped well of the courses down to 300's before surgery.
TAH/BSO. Plus rectum plus omentum plus appendix
3 more rounds of carbo/ taxol, ended in June 24/06/12. Ca 125 =128
Changed everything in my world, became dairy free and vegan macro/biotic at diagnosis.. Lots of mediation and acceptance of issues troubling me beforehand.
Felt ok on treatment, tired, tingled extrembetories, lost my hair etc but can live with all that.
So sure all would be well.
Had a nagging., pain in my rib even in last 6 wks of chemo. Oncologist sure that it is linked to omentum surgery,but it was harsh not like normal adhesion. Gabopentin medication very effective. Asked for body scan which I had at mount vernon middx ( different to where otherv
treatment given) I also sneaked in a ca125 request,,which came back at 800!
Plan was to try tamoxifen for a cople of months as only off chemo 10 weeks!!
Then body scan showed lots of ' Rice Krispies / barnacles/ encrustations down descending colon,out side liver and diaphragm area.
It was decided by me that the tamofen didn't stand a chance of putting out this re ignited flame, which I feel never went out just damped down.......so chemo to be restarted and then go onto tamoxifen at the end of then 4-6 cycles. Apparently 20% of ovarian cancer patients will react to this mainline breast treatment. Worth a try
On Monday at 1 am I woke in terrible bowel cramping pain. So bad I ran around the house like a headless chicken! Took swigs of oral morphine stale in the fridge... Comical on reflexion but I knew as a nurse I was obstructing...... Son called 999 and I was brought into hospital.
Pain management excellent, and steroids to reduce bowel inflammation in a pump form. Bowel calmed down and cleared! Yhee...... Meanwhile chemo recommended different prescription .. Carboplatin and gemCarb ..
Today had ascites drained 2 litres,mso not as bad as 9 mths ago when it was 5 litres.
Thoughts.. Mine.... Shame... Not a good prognosis the medical staff seem to say that then longer the first remission the better the outlook.... I truly do not think I went into remission so where does that take me? I have to believe that this new combination will be more effective.... Going into bowel obstruction is scary and painful, it is still moaning as I type !
I remain positive and defiant. My lovely daughter in law brought me in a bracelet today,a silver bangle and it has twisted around inside and out ' EVERYDAY .... Holds the possibility of a miracle' I shall wear this with pride and determination to survive.
Any thoughts bloggers?