Metastic clear cell...

[carrotmunch5]

Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant reckons it's not holding anymore. I still have a few options. We'll have chat more next week. I just feel one after another, just had liver resection three months ago! ( Where recurred from ablation last year). Feels never ending journey. I am quite strong headed person, but every now and then, it gets me. How long can I go on? Are there anyone who are on clinical trial which are not Atari/ Atri trial? I just feeling down today after hearing the result of CT.... Are there anyone with clear cell in remission? Rainy and chilly here, stay warm everyone. 🙏🩷😊☔

[Lizz49]

Hello there and am sorry to read your update, I know it’s a rough journey for sure. And you’re right it does feel like a never ending journey sometimes…I don’t know of any specific trial but hopefully your oncologist will have a plan of action for you soon.

Sorry as not much advice to give but I’m currently having a quick recurrence after second debulking only in March, so I understand how disappointing it all is. I have heard of a few ladies on here who recurred with clear cell then had more surgery and achieved remission for many years, so please don’t give up hope! Sending hugs and positive thoughts to you Xx

[carrotmunch5 in reply to Lizz49]

Thank you 😊🙏 for your message. Really appreciate. what a journey we are going through. Sorry to hear your recurrence... Same to you, hope your oncologist have some plans for you too. Thanks again for your kind words ... 🩷🙏🩷

[Mariej2021]

Sorry to hear you are going through this and so soon after the liver ablation I am not sure if Bouquet Trial still recruiting Your clinical team sound really supportive and progressive It seems as if they may have suggestions and maybe you could also have an opinion at a Specialist centre and ring the Ovacome Helpline to ask what trials are out there Sending you positive thoughts xx

[carrotmunch5 in reply to Mariej2021]

Thank you very much for your reply. I'll look into it. I feel better this morning, my mind is more in centre, ready to take on today. And tomorrow is another day, day at time... Thanks for your message. 🙏🩷🙏

[lesleysage]

Definitely relate to "tomorrow is another day, day at a time". I am one of the ladies who had secondary surgery for clear cell recurrence in very early 2013 (first diagnosis in summer 2011) after a second opinion and surgery with Prof Christina Fotopoulou. No recurrence of OC since, but developed a completely different bowel cancer in Spring 2021, so hence agree with one day at a time.

Treatments have moved on a pace since then for many of the types of OC, so chatting with Ovacome Helpline / Support team sounds like a good idea for any up to date into.

Warmest wishes. xx

[carrotmunch5]

Thank you Lesley 😊 for your message. I had my first surgery with Prof. CF too. She is great. ❤️Sorry to hear you developed bowel cancer. Day at a time is all I can do at the moment too. If I think or try to see a big picture/ future which is a bit overwhelming. Don't know what happens tomorrow. I am living in the each moment. Decided not to spend time with people I don't really want to spend time with. 😆 I am doing my best each day ( sometimes sleep is the best I can do, I sleep 😊) to live my life. Certainly having cancer gave me different outlook on life. 🙏❤️🍂

Thinking of you. Thank you for your time replying to my post. 🙏