Hello lovely ladies, I hope that you are all ok.
I have been for my 4th chemo today, and after the one 4 weeks ago my CA125 has gone down to 21 which is good. I have 2 more sessions to go,so I am keeping my fingers crossed that it will reduce to single figures
Take care ladies.x
That’s good news indeed, Caleda. Thanks for sharing, and long may it continue!Sashay
Thank you Sashay.
Thats brilliant news Caledra, and long may it continue. Just what we all need to hear.lve been for my blood tests today to Christie's mcr very busy. Fingers crossed for good results on Thursday. Love & hugs SheilaFxxx
So glad you're having good results Caleda. Go kick it into touch!!. Xxx
Thank you Win.Are you starting chemo?x
Caleda, I've had some unexpected good news. When I had my scan results about 3 weeks, the radiologist had reported that a pelvic lymph node had grown and it was more than likely cancerous as prev 3 nodes that I had removed in December by Prof CF. They had an MDT meeting to discuss next stage i.e confirm by PET scan and possibly radiotherapy. My oncologist said that the 2 male radiogists looked at my scans and disagree with the lady radiologist and they said in their opinion nothing has changed and the lymph nodes have not increased in size!!?? I am very happy as you can image as I'd just finished 6 months of carbo/gemzar and if I'd had progression whilst on this chemo then my oncologist said I would be platinum refractory. I cannot understand how she could have made that error very bizarre. I will be having regular scans every 3 to 4 months as my CA125 shows them nothing (words if oncologist) as it was only 3.4 on recurrence. Lowest it's ever been is 1 yes 1.!! It's now 2.8. Very unreliable. I am so relieved but I've had 2 weeks of being very upset and had caused me great anxiety thinking I'm platinum refractory and no longer respond to chemo. Im ok now and just had to put it all behind me and start living and enjoying my life again.
Thats sounds awful Win, but at least you know where you stand now which is good news. As you said yourself you can just get on with life now,following all those discussions. The way to look at it is,that everyone makes mistakes sometimes,and it is good that there are many people at the MDT meetings etc. Wishing you luck.x
I think you’re on the same path as my mum. She has stopped after 4 carbo/caelyx with a ca125 of 14. Are you going in to a parb afterwards? Any idea which one?
Hello,The aswer to your question is no I am not going onto a parp. I had Rucaparib following second line treatment carbo/Gem and it worked for approx 15 months. If your mum is offered a parp then my advice is to to take it, as some ladies on here have longer time before a recurrence.
I hope this helps, and wish your mum luck. x
That sounds like really good news, Caleda. I’m so pleased for you! Xx
Thank you Delia, It is becoming a little worrying, as once i complete the 6 cycles of chemo,there may only be one option which is to pay for Avastin privately as it is not available to me for 3rd line chemo.
My Oncologist said I was in good shape and so maintenance drug appears to be the right decision.
I hope that you are doing ok. Take care.x
Great news. xx
Wonderful Caleda, have everything crossed, hope I don't fall over x
Thank you Liz,I will keep my fingers crossed for you. Take care.x
Brilliant , brilliant. Keep marching on. You’ve got this xxxx
Great news Caleda, may it continue for your next treatments. Sue xx
Woohooo🥳🥳🥳love good news!! How are you feeling? I get my 2nd chemo Monday x
Hi Newbery,I am feeling ok thank you, day 4 following chemo I generally feel a bit more tired, but honestly not to bad really.
How are you coping? Try to stay positive if you can.x
That's excellent news , very pleased for you.Cheryl x
Hi Cheryl, Thank you. How are you doing now? I hope that you are ok. x
Caleda ,I'm doing ok at the moment ,had three months on a break from chemo, saw my oncologist Tuesday and scan results show no change since last one ,so more chemo free time ,unless my ca125 shoots right up then he'll review it again , totally surprised, fully expected the scan to show progression and be back on chemo next week , so I'll try and enjoy the chemo free time..Your news is very promising.
Cheryl xx
I am so pleased that you are doing well at the moment Cheryl, as you definitely need a break from chemo. I was hoping to get away with 4 chemo,but the Oncologist has said I need 6. I might do watch and wait after this if I can. He wants me to try Avastin, but I am not really sure about this. Fingers crossed that you stay the same for the foreseeable future. I think sometimes we have to be grateful for the good times,but it is extremely hard when you do not know what is coming next. Take care.x
I've never been offered Avastin ,will have to ask oncologist at next appointment ,I've had paclitaxol and Carboplatin for first second and third line then Rucaparib ( didn't work) then caelyx and Carboplatin.. Good luck with the rest of your treatment.Cheryl x
Thanks Cheryl x
Wonderful news! Sending positive thoughts to keep marching on! You can do this, Donna xx
Thank you for your positive thoughts.x
We'll take a CA125 of 21 anyday, that's great. Good luck with the rest of the chemo.Siobhan x
Good news!
Good news!
Good news/bad news
Good news
