Positive news yesterday, my ca125 has gone down from 166 in October to 18 ,this is after four cycles of caelyx and Carboplatin , I found the last cycle very tough and was ready to give up , but the reduction has made it worth while ,Had my fifth yesterday then one more to go before I get a break , I'm really pleased , I was feeling very low ,this has perked me up.
Cheryl x
Fantastic news! So happy for you, treat yourself to something nice to celebrate! Xxxxx
Thank you ,yes I will have a treat .x
Thank you ,thinking lunch out today x
Fabulous!! Good news!! Keep marching on amc celebrate xxxxxx
Thank you ,may have lunch out today .x
Fantastic news! Enjoy a big yummy lunch,you deserve it! xx
Thank you , I will .Cheryl x
Cheryl. I’m so pleased for you. I had my third infusion of carbo Caelyx last week. My CA125 is down from 152 to 33. I’ve got a CT scan in two weeks to see if liver mets have shrunk. Onc wants to see a 30 % reduction. I thought I was managing decently until my 3rd infusion last week. I was lying in bed unable to sleep from pain and like you, I was feeling like throwing in the towel, but your post has encouraged me. I will speak with my onc to see if anything can be done to help me endure. Thanks for sharing your good news, and may 2022 be good to you. Sashay
So pleased to hear it is working for you too ,I found the weakness and fatigue the worst last time and I got bad mouth ulcers for the first time ,hope you scan is what you're hoping for ,I think it will be . Keep going .Cheryl x
Sashay, I am sorry you’re having a tough time with the chemo. Have you connected with palliative care? It seems like they should be able to help with the pain. Xx
Thanks, Delia. I met with palliative care. The woman told me to use a heating pad for my stomach pain, which emanates from my digestive system. Not helpful and Does not instill confidence in the future. I have signed up for meditation and also yoga classes. Fingers crossed 🤞🏽 Sashay
Well done Cheryl for keeping going . I am really pleased for you that your CA125 has reduced down to 18.You need to treat yourself to something nice. Take care.x
Thank you ,I'm thinking lunch out .Cheryl x
Great news Cheryl X
Thank you ,best news I've had for a long while .x
That’s excellent news, Cheryl. I’m so relieved to hear it! Knowing it’s the last will help you through the sixth chemo. Hang in there! Xx
Thank you ,it affected me so bad last time I was ready to say no more ,now got the strength to carry on .Cheryl x
So pleased for you hopeyou enjoy your lunch out xx
Thank you , enjoyed it ,fell asleep when I got home .x
That’s great news Cheryl ,all we need now is Spring 💐Sending hugs Dee x
Thank you Dee , looking forward to Spring .x
That is wonderful news and so happy for you Cheryl. Enjoy your lunch and keep on that happy face 😊 Donna xx
Thank you Donna , definitely got a happy face today. X
That is such good news and know how hard it is but this a a great encouragement. Hang on in there and let us know how you are x
Thank you Lizzieanne, bit rough today but reminding myself it's doing the job .x
Hello, that’s a huge drop in your CA125, wonderful news. 👍👏👏 definitely worth doing something to mark the good news.
I will be having my 4th cycle of Caelyx and Carboplatin next week, really hoping my CA125 will drop a decent amount too ( have just had 4th covid vaccine, so not sure if this will have an impact on it).
Just recently had scan results back - after 2 cycles it showed that things were stable so not growing, am taking the positives from that !!!
Will you be offered any further treatment after you finish the 6 cycles of Caelyx and Carboplatin as I was told there isn’t anything else available (was on Niraparib for 11 months before a reoccurrence hence being on chemo now) ?
Enjoy your celebrations 🫖🍰 and maybe a glass of something nice🍹🍷xx
Thank you flute .Hope you do well on caeleyx and Carboplatin too ,weekly taxol was mentioned next but nothing definate ,my oncologist doesn't tent to commit to anything till all results are in , so that will be after my break ,he has suggested a possible three month after my sixth cycle . X
That is fantastic news - so pleased that the chemo is doing it’s job❤️
Thank you Eriksendi . X
Great news Cheryl keep up the good work. That combination had the opposite effect on me and made matters worse so I'm really pleased it's working for you. Sue xx
Thank you Sue ,I'm sorry it didn't work for you , this is a roller coaster of a ride isn't it . X
Not many Miss Moneypenny. Let's hope there's something good around the corner. XX
Wishing you well .xx
Wising you well too Cheryl and all the very best XX
That's brilliant news, so pleased for you 😊 you've got this! 😊 Xx
Thank you Jaynilee . X
Brilliant news Cheryl, so thrilled for you and long May this trend continue ❤️Xx Jane
Thank you Jane ,I'm certainly needing a break soon .x
Hi CherylSo pleased to hear your good news. Well done for getting yourself through that tough regime. Just one more to get through!! Enjoy a lovely lunch out you’ve certainly earned it!
Love and hugs
Claire xx
Thank you Claire ,feeling rough now after number five but telling myself it's working . X
Hang in there, you’re nearly there and then hopefully you’ll get a long reprieve 🤞🙏 xxx
Good positive news Cheryl. Well done and keep up the good work. X
Thank you Rose .x
You’ve got this Cheryl xx
Giving it my best .x
Pleased to hear this!❤️I wanted to give up after the 4th cycle of frontline last April.
Thank you ,Me too but three years later I'm still here ,keep going . Xx
Cheryl lm delighted for you treatments doing its job just brilliant, just one more too go. Love & hugs SheilaFxxx
Thank you Sheila. X
Thats brill need Cheryl which proves the chemo us doing its job. Well done persevering through this I know it's not easy. Keep up the positivity.. All the best. June. Xxx
Thank you June , it's not easy but the only choice , I'll keep plodding on .x
So glad it works, Cheryl. Was worried as you said you're struggling with the current regimen. Not much longer now, and then you'll hopefully be in for a breather.. where you can be more yourself again. Hugs. xx. Maus
Thank you , whatever chemotherapy I've had has affected me really badly , should be used to it now .x
Wish that worked.. for you and me and everyone else. Alas... . Still, at least treatment's effective xx
Fantastic news, well deserved Cheryl. Sending lots of love 💕
Jackie🤗🙏💕🌈
Thank you Jackie, I'm very pleased .x
So happy for you Cheryl. I'm also on that chemo combo + Avastin & about to have my 5th of 6. I also wanted to stop but I know it will be worth the effort & what an effort it has been so far !Good luck to you for the rest of your treatment. I'll be thinking of you. We've got this 👭 💜
Thank you ,hope you are doing well on it as well ,it's not an easy ride we'll keep battling on .x
Great news and well done sticking it out, brave lady xx
Thank you , I've found it tough but on day four after fifth cycle and not as bad so far as last time .x
Spooky, exactly same for me but after ct and bloods good ( scan clear and ca125 good) due to awful side effects from this combination decision to have carbo only for cycle 5. Am not likely to have final one as causing total havoc with stoma and brain fog . My neutrophils were really low , between 0.5 and 0.9 despite the filigrastim injections after each cycle. Keep us posted xx
Sounds like you results are really good ,( clear scan ) my half way scan was a reduction , shame youvy had such problems with neutrophils etc , wishing you well .x
Bloody brilliant makes it worthwhile the chemo when you get good results xx
It certainly does ,I'm constantly telling myself today it's worth it, ,I'm suffering from chemo number five ,can hardly get off the settee today .x
That's so hard I remember those days well. I'm having Avastin every 3 weeks and what a difference this drug is. Will you stop cycles now as your ca125 has gone down x
I've had my fifth ,one more to go ,but my oncologist said I don't have to have the last one if I don't want to ,but my hope is to have it and get my ca down as much as possible before I have a break .xx
You are strong as 18 is really good. Your bloody amazing I had 6 cycles and then surgery now on avastin.
What was your CA when you got diagnosed? X
Can't remember now , never really high ,in the hundreds I think , I was diagnosed 2019 ,six cycles ,surgery , three more cycles then Ned , recurrence after nine months ,now on fourth line , maintenance ( Rubraca) didn't work for me .
Yeah still going such an inspiration. I'm here if you want to text. Not good at phone calls.
Thank you , really appreciate your support .Cheryl .x
Cheryl, I am delighted to hear your news & we all need to hear the positive wins against this dreadful disease as well as supporting each other when the news is not so good. I hope you have treated yourself after getting through the tough times along the way. 🤞You stay healthy & well 🥰 Mag
Thank you Mag ,I'm struggling a bit with this last chemo , number five, but should be over the worst in a few days , keep reminding myself I'll have a break soon ,you take care .xx
Congratulations its a very good newsMay i ask u about something..what medicin u will take after u finish these 6 cycles ??
I'm not sure yet , I'm better not knowing or I'd stress about it , I'll put a post on when it's decided ,I'm going to try and enjoy my break . Cheryl .
Everything will be fine❤ waiting for u positive posts❤
Sixth chemo Tuesday then a break ,can't wait .x
Thats fab news xx
Thank you ,sixth cycle on Tuesday then a break ,can't wait .x
Good news!! So happy 😀
Positive 
No news is frustrating
Amazing news!!! NED 🙏🏼🙏🏼
Struggling to be positive! 
