No news is frustrating

Hi ScardyCat

So sorry thinking of you.. Try and have a good weekend... I know it easier said than done love x G x

Thanks Gwyn I just sometimes get fed up of the endless waiting. My diagnosis was a bit like this

You must be feeling really p****d off with another delay. If it was me, I would go ahead with your plans, whatever they are, you can't always live by thinking 'what if......'.

Have a wonderful weekend. Enjoy the sunshine, scenery and some fun.

Love Wendy xx

Hi I feel for you when you say your life is on hold, I feel like that and I have only just been diagnosed. I feel I cant plan things further than the end of the year. I do hope your results are good, and enjoy the weekend, hope you have good weather Love and hugs Babs x x x

What a b****r! Don't put off the hairdo though! Anything that makes you feel better is worth the cost and, anyway it will be a month before you get results and probably a couple of weeks after that before chemo starts and not all chemo takes your hair! My last lot did not! By then your hair will have grown and will probably need cutting again, meantime you will have had a boost and it may even have made you feel better!

Chin up! Thinking of you!

Margaret!

Ps! Let me know if you see the sea at Weston! Everytime I have been it was just mud! Like Southport! The tide goes out a long way! Have a lovely time and remember to live and enjoy every day, any other way and you have let this b disease win!

You are right Margaret

Have a lovely time at the sea. As Margaret says live and enjoy every day. That is one positive thing that this disease has taught us to do.

Love Suex

Have a great weekend- I have fond memories of Weston- nothing to do with the Pier or the mud! I actually saw the Beatles there! That dates me doesn't it?

Enjoy!

Love

Anne

take care of yourself and chin up xx

Oh Scardy

How frustrating for you. I totally get what you say about putting your life on hold, as I have been in this position, but I have got a new attitude and that is to try and do as much stuff as I can and when I need to have chemo I will cross that bridge when I come to it. My cancer is growing slowly so I know i will need chemo in the future, just not sure when.

So, I think that even if your doctors do decide that 'Olivia' is growing they may not necessarily want to give you chemo straight away. Hopefully your pain and feeling unwell are down to the gallstones and once they are sorted you will start to feel better.

When I first came on here, the best bit of advice I was given was to try split time into smaller chunks and focus on short term goals. So, I agree totally with Birthday Girl Margaret, that a hair-cut will never be a waste of money because it will make you feel better. You can't beat that feeling of having just had your hair done and every time you catch yourself in the mirror, you think 'Who is this glamorous thing?....Oh, its me!' *coquettish giggles*

Have a lovely weekend at the seaside, have an ice cream for all of us and just do anything to make this month go by as fast as possible.

Take Care Vx

The waiting game is miserable! Go ahead and spoil yourself as much as you want. Can't stand the l'Oreal ads but you ARE worth it!

Linda

oh dear hi i was convinced that i may have oc but i had a scan on my abdominals yesterday and had a look at my liver and ovaries and gall bladder which showed a solid gall stone and fat on my liver and also impaired glucose /diabetes which could suggest polystistic ovaries which im waiting for an internal scan to check my uterus and ovaries.Well the guy who scanned me yesterday said he couldnt see any suspicious mass and my ovaries just look small.I have huge enlarged stomach and i look like a pregnant duck with triplets lol still not convinced its all that straight forward.I 've always had problems with my hormones and have refused to take the pill for years as it makes me very moody and anyway although my periods are normal i know im not fertile and haven't been for 9years about so.

Oh you should spoil yourself but obviously look after your diet as this makes huge difference to your outcome dont wait to change. However an occasional treat is a must though,please enjoy yourself it can make a diffence to cancer cells reproducing stastitics have been done to prove it!x

Take Care

Nicola x

Hi thanks yes i know i had some grit 15 years ago my god that was painful and this is a big one but drinking 5 litres of water can get rid of it or shrink it to pass it wish me lol.Ive completely changed my diet and that will help for the future but they i have diabetes still got to deal with this stomach otherwise things wont improve properly but i know water is a great healer!Im just waiting for other scan i am going to get them to check my bowels to be on the safe side seeming as i have had problems with digesting food and having all the enzymes on need which can lead types of cancer if not produced properly.Ive been doing some research.Enzymes are essential to kill cancer cells!

I got all this from the internet including that raw food veg and fruit produce the enzyme you need where as cooked doesnt produce it when you eat it!

THank you xxx

Hi Scardycat

A month seems a long wait especially if you don't feel well.Heres hoping that it is gallstones causing the problem.

A new haircut will definitely lift your spirits.Just had mine cut today and I 'm really pleased with it.

Also , even if you do need chemo you won't necessarily lose your hair. I've just had platinum only and kept all mine.2 years ago I had platinum and caelyx, didn't lose my hair then either.

I hope you have a lovely weekend.

Hugs,

Juliex

I wasn't sure If they would give me carboplatin again worried about having taxol

Dear ScardyCat,

The first thing is to enjoy Weston. Don't forget to send me a wave to me across the muddy Severn Estuary to Cardiff. It's a great idea to get away and try to put it to the back of your mind if you possibly do that. I just hope those gall stones don't give you too much discomfort.

I agree with the others. Treat yourself to a hair cut. I only had carbo-platin and didn't lose my hair but had prepared for taxol and had organised a short-back and sides for myself which I regretted as I never lost my hair.

We're all sending loads of love and good wishes. Hoping you have a lovely weekend and post us a bit of cheering news.

Take care. xxx Annie

Hi Scardycat.

The waiting around that we all have to do is always the worst thing isn't it? While we're waiting for the clinicians to get conclusive information, our minds go into overdrive thinking the worst is about to happen.

I would get my hair cut. Live your life as though with the glass half full and enjoy your weekend in Weston super mare and go for a run along the beach.

if the cancer is back, you're just gonna have to bend with that wind when it happens - but don't waste this day, this moment worrying about tomorrow. Remember 'life is a gift, that's why they call it the present'...........and remember that we're all with you whatever happens.

love

Eleni x

Thanks Eleni I was thinking about you as I was changing buses in Bristol. I'm going to get my hair cut. I've also had phones calls today from my GP and my CNS but of course I was traveling back to Manchester. Now I'm dying to know what they've got to say

Just a bit of an update got an appointment to get my hair cut on Thursday. I spoke to my CNS today and they will be discussing my case next Wednesday at MDT seems I might be being considered for more surgery. My next clinic appointment is not until 02/08 so CNS will try to update me by phone otherwise I'll ring her next week and start hassling for an earlier appointment.

Oh my CA125 has fallen from 69 to 65 over 3 weeks

Hi Scardy

Sorry, I think I've missed something here. Surgery? Is this for the gallstones, or have they now decided that this is definitely a recurrence? ... or something completely different.

Vx

Well the oncologists are based at The Christie and the surgeons at St Mary's. I don't really wan to have to wait until 02/08 to find out what is happening. They could still decided they don't need to do anything at the moment

Just enjoy yourself and keep the hair. What about a pet scan? Maybe they can get more definitive results that way. Feel good, enjoy the summer and try not to worry... I know it's easy to say...but give it a go

That's so odd that it posted as new on my timeline. Feel good.