Just over a week ago I came home from my 3rd stay in my local hospital this year. Each time I was short of breath & told I had a chest infection. When I was discharged the 2nd time I was only home one day, & was back next day, in ITU & on a ventilator for 2 - 3 days, in hospital for 2 weeks altogether. Very scary for my family & myself. I hope I can spend more time at home now.
Last Tuesday I had an oncology telephone appointment. There has been more progression of my cancer, so they have discontinued the . Megace I was taking & told me there is no further treatment except for possibly consideration of a trial with Gemcitabine & a trial drug, with no guarantee I would be well enough to be considered for it after my recent health problems. I have a face to face appointment in 5 weeks at Addenbrookes. I have also been contacted by the local hospice. Di
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Di16
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Hi Di16, I only joined this group in 2019 & have just had a quick glance at your OC journey since 2008. You have had many knock backs along the way but you have always seemed to have found the strength to get back up & carry on, which I admire you for so I feel you are not done yet. I just started chemo again for first recurrence so hopefully I will have the same strength that you have had for the last 13 yrs to continue to fight this dreadful disease. I just wanted to say I am thinking of you & hope you will gain some strength so you will be considered for the trial. Please let us know how your doing, take care 💐 X
I would echo Tulips66 comment...you have shown such courage and determination but I know that such a scary hospital experience can set you back. Being well enough to have chemo can be a real issue. Sending you love and strength xx
At the moment I'm not sure whether I want to go on the trial. None of the chemo I've had in the past has been very effective, & Gemcitabine is only being offered (possibly) because it's part of an early stage trial, which the oncologist said are not always very successful in treatment. I'm wondering whether I'd be better off staying as well as possible for as long as possible without the chemo to spend time with my family. Di
My heart goes out to you, Di16, you’ve had such an eventful journey so far. I hope you can settle upon a course that will at least give you good life quality and comfort with your family, whatever you finally choose to do.
I’m sorry you’ve been through so much! I think if I were in your situation I would go for quality of life but no one can make that choice for you. Whatever you decide I hope you can rebuild some strength and enjoy the days. Xx
Your decision will be the right one. But perhaps another opinion? Have your read about the success of Cyberknife/SBRT with GCT? Might be worth exploring, I know they do it at the Royal Marsden. I'm guessing surgery isn't an option - but could it be with another surgeon? If you want it, of course. Wishing you strength and courage, you'll make the right choice. Xxx
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First dose of trail drug
Attended nhs complaints resolution meeting
Clear Cell Stage 1 follow-up process - no scan or abdominal examination. Anybody out there with similar experiences?
THIS IS MY LIFE , "BC & WC"
