Running Out of Time and Ideas

[Kouyate]

Hi allWell I was told in June that I have less than 12 months so off u pop! That's pretty much been it. I asked if there were any trials and was told they would refer me to Royal Marsden. Took 2 months before I was finally seen. I was screened, all looked good but there were no slots on the trial so I'm on a waiting list. So went back to my Onc and asked for more referrals, got one at The Christie and one at UCHL, went to see both last week, but I'm on waiting lists for those too! How on earth do I actually get on a trial when I've had no luck in nearly 6 months 😔 What makes it worse is I now need to try and get an appointment with my Onc which can take weeks, just to try and get more referrals, and I just feel I'm running out of time. Just feeling so low and scared

[Leniko]

you or your advocate (a forceful friend or relative?) need to super-firm to the point of pushy, to make them understand your rough timeframe. There must be some exceptions? Will your Onco push them a bit?

Hugs.