I apologise in advance for length of this post but felt I had to let you all know how wonderful the NHS have been.
Last week I felt more tired and breathless than normal but thought day 11 post Caelyx number 2 so low RBC etc. District nurse rings each week to see how I am and she thought that I should talk to CNS. I did and their advice was to speak to GP or go to A&E. I spoke to GP who called the paramedics who arrived in 20 mins. After giving me the once over they decided I needed an ambulance to go to hospital. They used my red card and phoned ahead to make sure I was kept safe once at hospital, talking to both A&E and oncology. Ambulance turned up within 20 mins or so and whisked me off. Once in A&E was kept away from reception and the bear garden that is a normal part of A&E. Given oxygen, blood tests, XRay at the bed followed by CT scan. Diagnosis was very large embolism in left lung. Pain and breathing worse now.
Admitted to Acute Medical Unit with proper bed available at 3.00am.
Whilst in hospital for my mini break of 3 days was visited at least once a day by members of each of medical team, oncology team, my own oncologist, Macmillan nurse and once by care worker.
The nurses in the Unit work so hard with so much care and compassion I was completely overawed by their dedication. Having to deal with so many different issues and different patient types was incredible.
Since my return home I have been checked on by the Palliative Care Team (Home visit), phoned by district nurse and my GP who offered to visit me at home.
I feel so lucky to live in this country and this specific part of the country I could not have asked for better care over the last 10 days. It is wonderful.
Now I just need to feel better and for Caelyx to be working. Is that too greedy an ask?
Hope you all are doing well and that you receive as good care as I have done.
Love to you all