Ready to go here I come OCTOPUS Trial

[111173]

As some of you may know after much pushing and shoving and being proactive I managed to get an appointment at TRM in London. Since meeting with their drug development team, I have now been offered no less than three different trials. They have tested tissue samples from my surgery which took place in Oxford in 2013 and they now know which is the best trial for me.

Due to the difficulty in getting to Sutton twice a week for the trial, I have been offered the treatment at my local hospital in Reading where it is now offered. If I hadn't been proactive I would not have discovered all these trial opportunities,

So here I am after new biopsies, CTs, heart ultra sound, ECG and copious blood tests and I start treatment on Wednesday. If this one doesn't help then I know there are others I can try. I can't be cured but hopefully will be given more time to enjoy life with my family.

I will let you know how it goes and get out there.

Lynne xx

[Yoshbosh]

That’s great news, Lynne! It’s a shame you had to push, but at least your perseverance has paid off.

Reading isn’t far from me 😊

Vicki x

[Jessica-DianeB]

Wow Lynne. Go you!!! All the very best for the trial! 🍀🍀🍀

What part of being proactive that got you there would you say?

I've just been referred to the RM and wondering what, if anything I can do to help xx

[111173 in reply to Jessica-DianeB]

If you already have an appointment that's OK, but I wasn't getting anywhere so I rang the RM and asked to speak to a particular doctor's secretary and hey bingo, he answered the phone - it was a fluke.

Xx

[Jessica-DianeB in reply to 111173]

Well done you. My oncologist did the referral last week. No app yet xx

[111173 in reply to Jessica-DianeB]

Good luck - I guarantee they will look after you.

Lynne xx

[Jessica-DianeB in reply to 111173]

Really hope so Lynne xxxx

[Yoshbosh in reply to Jessica-DianeB]

I’m sure you’ll hear soon, Jessica. I think my RM appointment was for around 10 days after my oncologist contacted them.

[Jessica-DianeB in reply to Yoshbosh]

Hope so. Guess I sit tight then! Xxx

[Yoshbosh in reply to Jessica-DianeB]

I found getting moved from the NHS to the private list more frustrating than getting the initial NHS appointment at the RM. Fingers crossed the appointment is already in the post to you x

[Lily-Anne]

Well done on being so proactive. The very best of luck with your trial

LA xx

[85live4ever]

Hi Lynne, that sounds excellent good luck lets hope this works for you. It sounds as if you have had enough test to last a life time. Keep us updated take care Cindyxx

[111173 in reply to 85live4ever]

Will do xx

[Maxjor]

Lynne--so glad to hear your perseverance worked. trsting with tumor type is so advantageous. Good luck with the trial! Ox

[Marieloiuse]

So pleased for you. Sad though that you had to push so hard to have these opportunities. Hope whichever trial you start isn't too punishing.

Wishing you all the very best.

Catherine X

[cah48]

Good luck Lynne! Warm regards Carole H 😊 x