Ten years after...

[vipervictoria]

Hello, I rarely post here. Originally I was called something like Chrystynh, but this forum became a bit clique-ish, IMHO, so I vanished and reappeared as the above.

I was diagnosed with stage 3c ovarian cancer in 2009. I fortunately had PPI because of my job. I settled an action for negligence 4 years ago, when one group of experts was arguing with another group of experts over my life expectancy.

I am still here, despite a bungled diagnosis & also bungled surgery and chemo.

Miracles are always possible, but it is also possible that my survival was due to taking a prescribed anti-statin, a NSAID, plus regular doxycycline because I travel often. I had my own cocktail of supplements, which might have helped.

I just wanted to try to give some reassurance to anyone who is in misery - or the even deeper misery of any hint of a recurrence - that miracles are always possible, and the developing theory of oligo-metastatic cancer confirms that even after metastasis, our chance of surviving is increasingly possible.

Love & hope to all.

VV xxx

[Cynthia18]

Thank you for taking the time to tell us your story...it gives me hope

[vipervictoria in reply to Cynthia18]

When all else is gone, I think you have to try to hope & believe that, however dark things seem, the is always another day. Personally I always try to watch the sunrise & the sunset. xxx

[Supergran38]

Thanks for your posting, it’s great to hear success stories.

I’ve just reached my sixth year after being diagnosed, have just started on the Rotterdam Regimen, so fingers crossed 🤞 it gives me a few more years.

Good luck to all the strong ladies and gents who visit this forum. 🤗🤗🤗

[sticky3006]

Thank you so much for posting. That’s started my Sunday off nicely!

I am also taking a statin, aspirin and doxycycline/mebendazole (COC regime) which I started just after my ca125 slowly started to rise. I’m so pleased you’re still here and doing well. Happy Sunday to you and keep up the good work 💪🏼. Sticky 3006 x

[vipervictoria in reply to sticky3006]

See our very own drdu, a retired GP herself who has had two relapses and is now I think 6 years clear... xxx

[ZenaJ]

Thanks for sharing. It's great news and does us all good to her it. xxx

[vipervictoria in reply to ZenaJ]

Thanks Zena XXX

[delia2]

Thanks for your post. I’m in my first recurrence and tending to feel like it’s all downhill from here. I’m intrigued by the supplements you take. I’m happy for your continuing health!

[vipervictoria in reply to delia2]

Hi - if you are in your first recurrence, the oligo-metastatic theory should give your hope. But as yet it is taken seriously only in the US where under Obama-care access to insurance was increased significantly. I wouldn't mention it to your consultant just yet - but please take care of yourself, I'd advise you not to take anything without discussing it with your oncologist, but you can find tips of the websites of both MDA in Texas and Sloan Kettering in New York. xxx

[delia2 in reply to vipervictoria]

Thanks-I’m in the US at Dana Farber

[Cbyrdie]

So glad you are still here ❤️ Would you mind sharing the statin and NSAID? TIA

[Joanne59]

Thank you for posting this, for years I have been reading the sad stories here,and wondering if there are any long term survivors out there.I am 3 years on and well,hoping it will carry on.x

[JanePW1965]

Hi VV. I remember you. I have been on the forum for a few years on behalf of my mum who was diagnosed in Dec 2013 - Stage 3C. She's had three lots of chemo but has been stable since June 17 following third line chemo. It's great to hear your positive story and to hear as many positive stories as possible. And it's so lovely to hear from forum members who have been around since I started chatting on here. Take care. Jane x

[Lyndy]

I remember you too. Thanks for your update ... I am interested in your take on this group. I think online forums go through phases... I have just stepped back from a fb group as I felt it was not good for me atm. In general I think they are very supportive but I guess there are times when we need something else xx

[Grace123]

Great to hear your positive story - thank you. xxx

[Artgreen]

What great news! I’m really encouraged by it so thanks for posting.

I think a lot of us dip in and out of forums, otherwise it can take all our time and we want to get on with living. It’s a weird feeling when first diagnosed as nothing feels real or yours least of all your body so finding the right “family ” changes I guess.

I’m on aspirin, statin, Metformin, fenbendazole, letrozole and other supplements but am screwing up the courage to go to the GP and onc for doxycycline. It’s interesting seeing what supplements are being considered to help absorb some of these off label drugs.

I came across melatonin and am considering that now too. I already rattle but the side effects are less brutal than chemo ( which isn’t effective with my low grade. )

However Trametinib is looking promising in terms of increasing time between recurrences according to Prof Gourley in Edinburgh if we can just get NICE and the NHS to incorporate it.

Nothing is simple is it? Never thought I’d ever have to learn so much so fast and that’s without the genetic info yet.

Wishing you many years of continued good health

Alex x