Hi friends,
As we all worry and deal with covid-19 pandemic, I thought it would be good to share some success I have been having, mostly because I never expected this much success...even though I remain open to the idea that my cancer can recur.
I am in remission about 8 months! My doc always said he felt that it was very possible with me. I have mostly been on chemo since spring 2016! I had an 8 month remission after the first round of chemo (carbo-taxol) then went on carbo gemzar (with a short try at doxil). With the carbo gemzar I was moslty NED while on chemo, but my doc said we should do it for a whole year. So I did. Also Avastin. I am still on Avastin. I was diagnosed stage IV... as some had spread to omentum...and I had some in one lymph node in first recurrence.
Mostly, as any of you in remission, I am scared of having to go back on chemo during this crisis, but oddly, did you know that Avastin is being tested to help severely ill covid-19 patients. (clinicaltrials.gov/ct2/show...?
But I don’t think that’s too relevant to actual protection against covid-19. Its more about treating pneumonia issues, if I am reading it right. Still, it comforted me even though I don’t understand it.
In general, it does sound like there are many factors with covid-19, so being on chemo isn’t something I should be very afraid of….trying to be positive.
But anyway, the good news for me is I finally got to remission, so for all of you who have been on chemo several years, and who feel like they might not get there, just saying it can happen sometimes.
In general, I want to resign myself to being on chemo long term…more because I don’t like bad surprises.
Just to add here, for people who like to use other things like from integrative approaches, the other things I am doing are:
As much exercise as I can handle-30 min a day or so, with some aerobics- Nia Dance
The following supplements all supposed to be for cancer:
Reishi mushrooms; Tumeric; Vitamin d3; an odd thing my acupuncturist prescribed Phyto-Cyto (she worked in my docs office and also cancer survivor-swears by it); ALA, Fish oil; Melatonin; astragalus; 6 cups organic green tea; Probiotics.
I also eat things listed on cancer diets like leafy greens. I am more or less on Keto…almost no carbs.
Mostly organic, no red meat, only organic poultry-very low organic dairy. Lots of healthy organic olive and avocado oil.
For whatever it’s worth… sometimes I don’t believe, but I do it anyway. I mean I figure if I do EVERYTHING. As long as it doesn’t hurt, I might as well. It gives me something challenging and positive to obsess about instead of worrying.
Anyway I felt like posting today. I visit here sometimes and it’s so valuable to hear about people’s journeys and I love the support this community offers people… so I just wanted to post. Thanks all, for being there and for your wonderful support!
Post-op pain four months after.
Help/Advice please on choice of treatment
Its Back
Back to reality 
