Home later

[Barmycharm]

Thank you everyone for your kind replies and suggestions re my yet another hospvacation?!

Neutrophils are still not playing ball, still at 0.1 although HB and platelets have improved.

My consultant has said I can go home so long as I go in for blood tests each morning and keep at home and isolated. That’s fine although felt like saying Do you know how many people have been in my room today, including electrician for about half hour?!!

My arms are shot through from so many blood tests and the canula kept having to be moved as veins were ‘blowing’ and they could hardly draw any bloods again this morning. Even the little things become big issues don’t they?!!

Anyway at least I can go home and rest with hubby and doggy and eat some decent food. And fingers crossed I start picking up soon at home without anymore dashes to A& E?!!!

Always so grateful for the help and support you wonderful ladies give, the only ones who truly understand what it’s all like because we share the same awful journeys unfortunately

Love to you all

Claire xx

[Petrolhead]

Glad you escaped home. Cuddle up to the dog and eat decent food. Whether you cuddle any passing electrician is entirely your choice.......

Best wishes

Fay

[Hidden]

You cant beat your own bed, and some comfort food shared with loved ones to speed up recovery. Good Luck x

[Katmal-UK]

Awww glad u being set free. Hopefully u will pick up at home xx

[Seasun36-uk]

Claire,

Wishing & willing your white cells to increase & get back to normal levels!!

I’m sure that great feeling of being cosily at home will help. What else? Home cooked food, a sip or two of wine, sunshine in the garden, stroking your lovely dog, a nice film on tv...

Have you had any of those injections? Is it called filgrastim?

Linda xx

[Barmycharm in reply to Seasun36-uk]

My consultant said if they don’t come up soon she will give me injection but would rather my body picks itself up because it helps immune system in the long run?!

Not sure what the deadline might be though. Xx

[Lyndy]

Lots of lovely rest and food for you lady... we want those levels up very soon ❤️

[shortfriends]

Hi Claire

I hope you are home now and cuddled up with dog and hubby watching entertaining nonsense on the TV and tucking into favourite food! Take care and try and rest and avoid well meaning but tiring visitors!

Have a good night

love

Pat xx

[Barmycharm in reply to shortfriends]

Yes that’s the thing isn’t it, now I’m home everyone thinks I’m fine and want to pop in. They always say pop and stay even when they cane see my eyes dropping?!! Kind of them all of course but they have no idea?! Xx

[Solange in reply to Barmycharm]

So pleased for you that you're now home. Hubby and dog must be very relieved to have you back. What sort of dog is he, by the way? Does he take up much room in/on the bed? Hope things improve for you soon. Fingers crossed, Solange 🤞Xxx

PS I've had a picc line twice and loved it. The difference it made to hospital visits was incredible. Had to go for a CT Scan last week and it took seven attempts of really trying to find a vein. Thankfully they did eventually so I could have the Dye. Even the Team who specialise in cannula fitting, using the ultrasound scanner been unable to do so three times Which meant no Dye. I would def ask for one if I were you. Xxx

[Lizchips]

Happy your home. If you have to give blood daily for a long period you might think about a pick line or a port. Ports are better they don't get infected and you can swim. Pick lines have more chance of infection and you can't get it wet. Best of luck, Liz❤❤🇺🇸

[Tesla_7US]

Please ask for a port. You can shower, swim, bathe.....live a more normal life. I've had mine for nearly 5 years and not a single problem. No vein poking ever. All blood, drugs, contrast material goes via port. 👍🤸‍♀️🤗

[Barmycharm in reply to Tesla_7US]

Are you in the UK? I’ve never heard of them being used in this hospital for anyone? Xx

[Tesla_7US in reply to Barmycharm]

In US. They are routine here. No cannula used on cancer patients.

[Barmycharm in reply to Tesla_7US]

That sounds so much better, the canulas were becoming such a pain, literally!

It’s a lovely sunny day

so I’m off for lunch in the garden 🥰 xx

[LittleSan in reply to Barmycharm]

I have a port and I'm in the UK. It plays up sometimes but is still tons easier. Enjoy the sun. Slather the factor 50 on! Xx

[ruthg55]

Wishing you speedy recovery now that you are home. Ruth xx

[BeeWild]

Sending you a big hug and keeping fingers crossed things resolve for you xx

[Maxjor]

Bet those neutrophils react to being home too! Here's hoping! oxooxox

[Hidden]

Glad you are home. Being home with hubby and dog will really help with speedy recovery.

Janet

[delia2]

I’m happy for you! It’s great to be in your own bed and have some peace after the hospital! I thought I’d lose my mind with lack of sleep last time I was in! 🌺🌸🌼

[1916]

Morning to you, lovely to be home where I'm sure you will recover more quickly.

My very best wishes to you.

Ann😊