Thank you everyone for your kind replies and suggestions re my yet another hospvacation?!
Neutrophils are still not playing ball, still at 0.1 although HB and platelets have improved.
My consultant has said I can go home so long as I go in for blood tests each morning and keep at home and isolated. That’s fine although felt like saying Do you know how many people have been in my room today, including electrician for about half hour?!!
My arms are shot through from so many blood tests and the canula kept having to be moved as veins were ‘blowing’ and they could hardly draw any bloods again this morning. Even the little things become big issues don’t they?!!
Anyway at least I can go home and rest with hubby and doggy and eat some decent food. And fingers crossed I start picking up soon at home without anymore dashes to A& E?!!!
Always so grateful for the help and support you wonderful ladies give, the only ones who truly understand what it’s all like because we share the same awful journeys unfortunately
Love to you all
Claire xx
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Wishing & willing your white cells to increase & get back to normal levels!!
I’m sure that great feeling of being cosily at home will help. What else? Home cooked food, a sip or two of wine, sunshine in the garden, stroking your lovely dog, a nice film on tv...
Have you had any of those injections? Is it called filgrastim?
My consultant said if they don’t come up soon she will give me injection but would rather my body picks itself up because it helps immune system in the long run?!
I hope you are home now and cuddled up with dog and hubby watching entertaining nonsense on the TV and tucking into favourite food! Take care and try and rest and avoid well meaning but tiring visitors!
Yes that’s the thing isn’t it, now I’m home everyone thinks I’m fine and want to pop in. They always say pop and stay even when they cane see my eyes dropping?!! Kind of them all of course but they have no idea?! Xx
So pleased for you that you're now home. Hubby and dog must be very relieved to have you back. What sort of dog is he, by the way? Does he take up much room in/on the bed? Hope things improve for you soon. Fingers crossed, Solange 🤞Xxx
PS I've had a picc line twice and loved it. The difference it made to hospital visits was incredible. Had to go for a CT Scan last week and it took seven attempts of really trying to find a vein. Thankfully they did eventually so I could have the Dye. Even the Team who specialise in cannula fitting, using the ultrasound scanner been unable to do so three times Which meant no Dye. I would def ask for one if I were you. Xxx
Happy your home. If you have to give blood daily for a long period you might think about a pick line or a port. Ports are better they don't get infected and you can swim. Pick lines have more chance of infection and you can't get it wet. Best of luck, Liz❤❤🇺🇸
Please ask for a port. You can shower, swim, bathe.....live a more normal life. I've had mine for nearly 5 years and not a single problem. No vein poking ever. All blood, drugs, contrast material goes via port. 👍🤸♀️🤗
I’m happy for you! It’s great to be in your own bed and have some peace after the hospital! I thought I’d lose my mind with lack of sleep last time I was in! 🌺🌸🌼
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Unbulking done 5/8, home 5 days later.
Home from the op !
I'm home!! Woooohooo!!
