You all give me hope!

[Husbandteal]

CA 125 climbing since December. Jan and April scans clear but not true Monday. Such a disappointment. Will know more next week but probably back to chemo. Abdominal wall thickening and pelvic fluid. Am bummed at 78 and fighting so hard. Just got all my hair back, drooping lower eyelids fixed from chemo and constant tearing stopped, teeth repaired, rare neuropathy or insomnia now...and on and on....Boom....begin again. Have been on Narapabib in clinical trial for a year. Have gone from singing "gotta walk that lonesome valley" to "climb every mountain"! Knowing so many of you have weathered recurrence gives me strength. No one truly understands, do they? I just needed to share...best to all.....

[Lind58]

My thoughts are with you ❤️ It’s such a hard journey to be on but you are strong as you know

[Tesla_7US]

Dearest Husbandteal, I understand just how you're feeling. Finished second line chemo last August 31. NED, but Chemo had dissolved my left hip! NO hip problems prior to chemo. Immediately had a total hip replacement, recovered, had months Physical Therapy, regained full motion, hair and eyelashes grew back, eyes stopped watering, neuropathy calmed down, got two teeth capped!!! And then I find out I have 2nd re-occurance 8-9 months later AND that original tumor tissue is somatic BRCA1! So back on chemo and will start Niraparib as soon as chemo finished. The point of all this is. A) The women on this forum are a total inspiration. Without them to understand the horrid nature of this disease, my life would not be as good as it is! 2) Please have your orig tumor material tested to see if you're somatic (acquired, not hereditary) BRCA because that opens more possibilities for excellent treatment. A hug and smile to you.

[Perthgirl]

So sorry you facing this again but, as we know, the view from the top of that mountain is pretty spectacular and we will all be right behind you, helping you over the difficult bits. Stay strong, stay positive and very best wishes 🌹💪🙏

[sticky3006]

I'm gutted for you and currently feel your pain. My ca125 has gone up to 38 after only finishing frontline chemo last September. I feel it's all a terrible nightmare that somebody will soon wake me up from. My beautiful daughters are only 11 and 15 so this breaks my heart. After the initial shock of getting my results back I now have put my big girl knickers on and will try and stay positive as I'm sure you will too. We've been through chemo before and come out the other side and I'm sure we will do again. You can do this!! Take care, sticky3006

[Husbandteal]

The view from the mountain top comment is lovely. Thank you. Am thinking this time around I may use less energy appearing to be just fine rest more, do only what I really feel like doing, and be especially aware that the people who truly care for me have already proven that....will no longer concern myself with wondering why so many just let go of me. Hope my one friend cranks up her homemade coffee ice cream again and another brings Chic Fila biscuits once again early some morning! That's love!

[Perthgirl in reply to Husbandteal]

Sounds like you already on your way up that mountain! Always be kind to you and listen to your body. Take care and hope for good news soon 🌹

[Husbandteal]

First big session yesterday. Feeling ok....went to a lovely wedding shower.....got news that if this cycle works I will continue on an infusion every three weeks to maintain forever. Am happy to do whatever to stay here! My infusion buddies have it far worse than I do and I continue to meet amazing women. Good news is we are all eligible for handicapped parking pass....had no clue. It is my intention to walk, walk, walk.....but sometimes on errands this will be huge help. Thank you so much for your support. Have really needed that. Diving in the pit of chemo again was so difficult but it is like that cold water in a pool....am in and ok! Do hate losing my hair again....will manage. Love and hugs....