I have been reading your posts since I got my diagnosis last year 14 feb 2017.Initially been told just a shade on the ovary.Then quickly march stage 3c advanced low grade syrus resistant to chemo.That news burst my buble .After agressive chemo taxel and sth else (sorry chemo brain).no hair told I can have an operstion.September unsuccesfull op.In so much pain stapled like an old couch kicked off from hospital Royal London.Unbelievbly in pain.Been told got months to live.More chemotherapy and avastin.So far 8 avastins to go and been told my tumor shrunk from initially 11cm .from a start to now 2.3cm.I am writing it incoherently to give people HOPE.I am taking cbd oil 15 drops curcumin 8g liposomal vit c 8g cider vinegar drink.Something is working.
Love you all.I am only 49.
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Justyns
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Hope your not in pain now,and that you will have years not months, I know what you mean,my bubble was well and truly buest last March 2017, how different things are now, xxx
What a stunning photo and a beautiful smile thank you for sharing with us, you’ve had a really rotten time but something is causing a positive physical reaction in you so keep doing what you’re doing and hopefully prove them all wrong. Keep as well as you possibly can be lovely ❤️Xx Jane
Glad you’ve posted. Welcome to this forum, although I know you’ve been reading posts. Well done you! Keep doing what you’re doing - may it be years that you have ahead of you!
Can I ask - why couldn’t they operate? Could they now?? Linda x
Hello.Operation failed becausecwhen they open me up the cancer was spread in many more unoperable places.Now the small bits completly dissapear and the rest calcified.hugs xxx
Hello ct scans are not 100 percent accurate I was told.Cancer was in many blood vessels unoperable.hugs
I’m glad something is working we have to grasp whatever it is , you look like a very beautiful positive lady & I believe that helps a lot stay strong xx
Hi Justyns, so glad you decided to post we all need someone who understands to talk to (correspond). When I was diagnosed my family were told I would not see the year out that was ,3- 1/2, years later I'm still here, many ladies have proved them wrong.
I did not believe I could do anything.I went along with the treatment but cancer took my life away so this news gave me some hope.In some places it dissapeared rest calcified .Still sinking inn hugs xxx
Hi Justyns. What a beautiful smile. With your attitude and strong will tgere is a long bright future. I keep my fingers and toes crossed for your full recovery. Xxx
Did the doctors have an explanation for the calcification? I had two ground glass nodules in my lungs which became calcified (which is our body's way of dealing with the invader). I firmly believe it was because of my meditation (and my GP supports my thoughts).
Fingers crossed for you.
And your hair is gorgeous! I love that silver grey.
I'm the same age, stage 3a low grade serous ovarian cancer (albeit operated/resected twice now). I think low grade tumours are still a bit of a mystery beast in the medical world, ever since experts recognized that those cells may react differently to treatment than the 'standard' high grade ovarian cancer, which often responds well to chemo. Low grade cells might respond, or they might not. Your medical team might be open to try alternative options, if they fit your disease profile. The trick is to try out what works with your tumours (shrinking them or at least keeping them stable), stick with it until/unless that stops working , and then jump to the next treatment option.
Glad to hear though that Avastin works for you and has dropped the tumour size. That's great news!
Recent research from the US (Dr Gershenson from MD Anderson in Dallas) suggests that hormone maintenance therapy could in some cases be beneficial for prolonging the time between recurrences, for low grade patients, i.e. anti-hormon treatment / aromatase inhibitors e.g. Letrozole.
If/when needed, you could maybe ask your medical team about Letrozole?
All the best and may you have many more years to enjoy life.
Wow.Thank you so much for your knowledge I feel I am treated with not much information from doctors just relay really on my own research.The way I was given the news got me into prepearing for the end.Sorry not explaining properly English is my second language.Thats why this gave me some hope thats not the end.love j
You could also get a second opinion from another hospital. I do that before every major treatment decision. Most of the time, all it takes to get that started is an email to the gyn. oncology secretary of the oncologist in that place, where you explain your case and attach all the relevant medical history and information.
They should definitely give you the details though, in your original hospital. It might also be worthwhile to bring a translator to the consultation, when you meet the medical team again. Don't be shy about asking for suitable clinical trials either, like LOGS.
Hi there...so pleased to hear your tumor is shrinking, let’s hope things continue to improve. Glad your still smiling despite everything your going through. Best wishes, Jo xx
Glad to hear your news. I also tale the CBD oil but only 3 drops thinking of increasing. I take curcumin too. I sm thinking of trying apricot seeds in capsule form. Do you know anything about that? Happy for your success.
Hello.I take 15 drops of cbd.stopped antidepressants.curcumin 8g daily also cider vinegar 20 mls with water before meals and 8g of liposomal vit c also biobran 1000mg japanees immune booster.I could be on chemo.Not many side effect that actually saved my life.I am scared to stop any of it.love j
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