Low grade serous

[Amyinva]

Hi I am new here. I was just recently diagnosed after my OB GYN did a hysterectomy, my uterus came back with low grade serous implant on it so now I have to have surgery and omentum next week. This week I am getting a chest/ab/pelvis CT scan with contrast. My CA-125 was 57 before surgery and now it is 30. Anyone have a similar situation? It seems like everyone I have seen is diagnosed after finding a tumor on the ovary but my situation is kind of backwards.

[lorraine71-Australia]

Hi Amy, I'm glad you found our community you will correspond with some amazing ladies when ever you need advice or just encouragement we are here.

Your 125 is in a good range.I hope the rest of your treatment goes as well.

I'm sure other ladies will be more helpful to you.

Chine up take care keep in touch Lorraine xx

[Eleni]

Hi Amy

Your CA125 levels sound positive and it seems rather a good thing that you had the hysterectomy so that you could be diagnosed. Well done on finding this forum as there are plenty of lovely ladies who will help support you. Good luck with the CT and stay strong. Hx

[Artgreen]

Hi there, mines not the same but I am also low grade serous after a hysterectomy and partial omentum removal stage 3 as it burst on removal and was found to have been present in the omentum so on chemo till March. Carbo/taxol . Then a scan in March and on going follow ups. ca125 down from 80 pre op to 11 last week. Like yours now within the normal range which is good.

I’m having it tested to see if it is oestrogen receptive so letrazole may be a further drug after chemo to prevent recurrence. I’m not sure but have asked about genetic testing as sometimes low grade can be genetic I see from this forum despite what the Macmillan booklet on OC and other Gynea cancers says ( it’s very good if you haven’t seen it and it’s free) .

Good that they found what they found when they did and good luck with the scan and the op.

Love

Alex x

[Maus123]

Hi there. I'm a low-grader too, but my situation is a bit different (diagnosed following the first big surgery) .

It's scary, facing a cancer diagnosis and another big surgery, but hang in there. Low grade is often more manageable than other ovarian cancer types, or may be even curable. A reduced CA125 is a good trend in any case.

As Artgreen / Alex said, it might be worthwhile to ask for the tumour cells being tested e. g. are they estrogen receptive, or do they feature specific mutations/enzymes that might point your oncologist to the best treatment options etc.?

Best of luck for the surgery. Maus

[Zena41]

Hello welcome, I am a newish low grader too x